Community Member
10 days agoHi there, everyone! I’m newly-diagnosed and have gone through a colectomy surgery of the splenic flexure in August, then had my first round of FOLFOX chemo this week. I am so happy to be here amongst friends that are having the same experiences as myself! My diagnosis is pT4a with metastasis to the visceral peritoneum. I have no obvious metastasis to any other organs in my body at this time. I’m wondering if anyone else here has had the same diagnosis and, if so, what has your experience been like?
Community Member
10 days agoWelcome to the community! It's wonderful that you're connecting with others who understand this journey. Many members here have experience with similar diagnoses and stages, and they often share valuable insights about their treatment paths and what to expect. The colorectal cancer community is incredibly supportive, so don't hesitate to ask questions or share updates as you continue with your FOLFOX treatments - others will likely relate to your experiences and offer encouragement along the way.
Community Member
5 days agoWelcome Kevin. It sounds like you found your CRC early enough that FOLFOX should work pretty well to clear it up for you. I was diagnosed with stage 4 CRC during a colonoscopy on the 80th anniversary of D-Day (12/7/2021) when I was 75. A blood draw at that point indicated that I had a CEA of 61.6. PET, MRI, and CT scans a week later indicated that I had several half inch tumors in my lungs and about 15% of my liver was functional. I started FOLFOX in the first week of January 2022. My biggest surprise from that first session was when I first walked out of the oncologist office into a 10 below zero parking ramp and the pain on my face was excruciating. It felt like I had painful icicles a foot long coming out from my face. Living with the chemo pump attached to my port didn't turn out to be nearly as bad as I had originally envisioned it being. I was sure that I would probably pull it out some night while I was asleep, but that never did happen. Before the year was out, my CEA numbers were back in the normal range (0-3). I've had my numbers go up and down since then, but have been treated with rounds of generic Capcitabine tablets a few times since 2023. Life is good. I think the most frustrating thing about chemo is the fact that after you do a couple hours of real work, you feel like you need at least a 1 hour nap.
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