Community Member
2 months agoHi I’m Trena and I am 38 years old. I was diagnosed with stage 4a colon cancer in 2022. I have had numerous surgeries and an abundance of rounds of chemotherapy (45ish). I am currently on a chemo break until surgery in November and then possible cryoablation after surgery. I have only 2 small tumors currently, one in my lung and one in my abdominal wall just below my rib cage. I also host the TN/KY community in Colontown and have 3 kids ages 12, 9, & 3. My first oncologist didn’t believe I could ever reach NED or be cured by my oncologist now believes that both are achievable goals for me. My best advice is to never give up and to be your own advocate. Make others believe you can reach your goals and have a support group that believes in you.
Accepted Answer
Your journey shows incredible strength, and the progress from your first oncologist's outlook to your current oncologist's belief in reaching NED demonstrates how much advocacy and perseverance can matter. Finding hope after extensive treatment often comes from exactly what you've shared - having a strong support system, setting achievable goals, and celebrating each milestone along the way. Thank you for hosting the community and sharing your wisdom with others who are walking similar paths.
3+ patients found this helpful
Community Member
2 months agoYour journey shows incredible strength, and the progress from your first oncologist's outlook to your current oncologist's belief in reaching NED demonstrates how much advocacy and perseverance can matter. Finding hope after extensive treatment often comes from exactly what you've shared - having a strong support system, setting achievable goals, and celebrating each milestone along the way. Thank you for hosting the community and sharing your wisdom with others who are walking similar paths.
Community Member
2 months agoYes,that's so true I have had thoughts about Colorectal Cancer and I've read the stories and have noticed that they all are a little bit different than others and don't follow a certain rule,I have just recently started to lose weight "15"# and now I'm trying to put it back on
Community Member
2 months agoYes,Only positive people in your circle of friends 🧡
Community Member
2 months agoI have lost a lot of weight in past few months, I am down to ski.n and bones weighing 115, haven't weighed that since I was a teenager. Mine is from not eating much bcuz like I tell my friends, one action ie eating triggers a reaction ie bowels wanting to move but don't and the pain can be excruciating when I involuntarily bear down. Have to wear diapers, my new norm as I have been stool incontinent for several months. It plain sucks.
Community Member
a month agoI have colon cancer and just had my first treatment. They are giving me Immunotherapy using Keytruda. Anyone else being treated with this?
Community Member
a month agoI really like hearing your story I have had colon cancer since 2023 stage 4 also.I am sure I have had it longer than that .I also have went through 2 surgery. Alot of chemo mine spread to my liver.but I am on a chemo pill for now that has stop it from growing I live in alamo tn.
Community Member
a month agoWhat is NED
Community Member
a month agoNED, an acronym for No Evidence of Disease, is a cancer term meaning that a patient's tests and scans show no signs of cancer, and is often used interchangeably with complete remission. While it is a positive outcome, it is distinct from being "cured," as undetectable cancer cells may still exist in the body. What
Community Member
a month agoOk oh well I never been that lycky.Guess thats why I didn't know.Thanku fir explaining.
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