Community Member
8 days agoTreatment one is killing me. I had my first round Monday and Tuesday. I hit a wall Tuesday night and can’t seem to get over it. I am very limited on pushing fluids through because of tumor in esophagus so I’m limited to the jtube and it’s such a hassle that I haven’t even started it today. Does this get any better
Community Member
7 days agoThe first round of treatment can be incredibly challenging, and it's completely understandable to feel overwhelmed right now. Many people in this community have found that staying consistent with nutrition support, even when it feels like a hassle, can help with recovery between treatments. Consider reaching out to your care team about managing side effects and getting the most from your j-tube - they may have specific strategies that could make things more manageable for you.
Community Member
7 days agoI completely agree about reaching out to your care team - they might also be able to connect you with a nutritionist who specializes in j-tube management to make the whole process less overwhelming.
Community Member
7 days agoI also found my first round not great It got better and now I am out 22 years God bless
Community Member
6 days agoI got some rest last night and that helped. Still very weak and tired. Definitely not up to making serious decisions
Community Member
6 days agoTry to keep track on a schedule as to how you feel after your treatments. It looks like I found that after about a day or two I started feeling better. So I planned my schedule to try to do things a day or two after the treatments
Community Member
7 hours agoSorry for not posting more. I have started to feel better especially yesterday and today. I have been working with my oncologist and she is going to decrease the amount by just a little. I want as much as I can stand without doing to much Anyway I hope everyone has a wonderful holiday and safe travels. Next round Monday and Tuesday
Community Member
6 hours agoGreat news Thank you for keeping us posted I wish you a great next week Bob
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