Esophageal / EG Junction Cancers

What to expect after cancer surgery: recovery time and swallowing?

If you have had the surgery, I would like to know what your experience was and how long it took you to get back to somewhat normal activity. My surgery should happen around the last of August or first part of September. I’m not looking forward to it but if it saves my life, I’m in. How long was it between the last chemo you had and the surgery? I was told they like to wait a few weeks for us to get some strength back that the treatments knock out of us. How long before you could swallow again. I know these will be different for every individual, but just would like to know from someone who has been through it.

How do you manage incontinence after chemo infusions?

February 11th I was diagnosed with stage three esophageal cancer. At the junction with the stomach. My Care team is at Vanderbilt Medical Ingram Cancer Center. World class staff in my opinion. I was liquid only diet for over 2 months. Once I received my 2 infusion the tumor had shrunk enough I can eat soft foods. I lost over 40# and was right on there precipice of starvation and malnutrition. Working on gaining back now. I am on the following protocol of infusion treatment every 2 weeks. Fluorouracil (FU-5) Oxaliplatin (Eloxatin®) Docetaxel (Taxotere) Durvalumab (Imfinzi®) once a month. There are mostly good days but some pretty rough ones along the way. I missed one infusion because my white blood cells we far too low. Back up now. I have a question for the group and I have a suitable work around to offer. The first is the work around I am songwriter and a personal healthy chef with a background in Integrative nutrition which I obtained while in culinary school. Neuropathy got so bad at one point I could not even hold a potato to peel it. So here is I toned it down enough to work. I ordered a pair of full finger, copper fit compression gloves then put 2 pairs of my nitrile gloves over them. Works really well. Now the question, does anyone have suggestions (other than the most obvious ones) to deal with the incontinence problem that comes with the steroids? It lasts for 2 to 3 days after infusion. I’ve tried everything I know. I was already being treated for BPH prior to the cancer diagnosis. Thank you.

Is my cancer treatment working if CT scan shows tumor reduction?

Newest CT scan shows cancer reduction and no new areas of concern. So treatment is working

How do I get through the side effects after my first round of treatment?

Treatment one is killing me. I had my first round Monday and Tuesday. I hit a wall Tuesday night and can’t seem to get over it. I am very limited on pushing fluids through because of tumor in esophagus so I’m limited to the jtube and it’s such a hassle that I haven’t even started it today. Does this get any better

I was diagnosed with stage 4 Adenocarcinoma. I’m currently on the Flofox protocol. How long does treatment go on for?

Can I drive myself to chemo or do I need someone to take me?

Dumb question Do you normally drive oneself to the chemo/immunotherapy treatment or do you have someone drop you off and pick you up 7 hours later? Thanks

What should I expect starting FLOT chemo for stage 3 GE junction cancer?

New Here I was diagnosed on February 16 stage 3 adenocarcinoma ge junction. I start durva and floc chemotherapy Monday. Scared and don’t know what to expect. I have some prescription nausea meds to start prior I also ordered gloves and socks to try and freeze the neuropathy out of my hands and feet. I’m 58 and in decent shape but I’ve lost weight from not being able to eat/ J Tube installed a up to 58 ml per hour. Anyway if anyone has any advice suggestions or whatever I would appreciate them

Has anyone tried proton radiation for recurring esophageal cancer?

I have recurring esophageal cancer. Just had a chemo treatments, which had very little effect on the cancer. We are looking into radiation treatment, has anyone done Protron treatments. What were your he side effects

How do I know if my cancer treatment is working?

Starting the second set of 3 treatments. For the holistic time in a year I didn't use my riding lawnmower. Used my electric walk behind, interestingly I was not worn out when I finished the yard. I would say the new treatment is workin💪

What does a Signatera test score drop from 1,005 to 0.04 mean?

I just got results from something called a Signatera test. My score has dropped from 1,005.09 to 0.04.since December 8th. Stated differently it has dropped 1,001. 5 points to less than even 1 point. My AI source says I still have some cancer, this is very slight. I never heard of til just now and will appreciate any intelligence anyone can share with me. Thank you.