Esophageal / EG Junction Cancers

Stage 4 esophageal cancer update: switching from Opdivo to Keytruda?

An update on my stage 4 esophageal cancer. The original cancer cannot be seen. Yeah!!! My 3 large lymph nodes are of course causing issues. Switching from opdivo to keytruda and I get to use the target drug for HER2 genetic coded cancer. Hoping the 3 amigos finally shrink up and go quiet. Causes severe back pain and stamina problems. Keytruda causes severe mouth sores and diarrhea but I got this as before. Just happy at least the original cancer is undetectable now.

Has anyone tried photodynamic therapy for esophageal cancer recurrence?

I have Esophageal Cancer, completed radiation n chemo in April 2025. But it’s back in November 2025 and I am gonna start Photodynamic Therapy. Has anyone gone thru this?

Has anyone had esophageal cancer surgery with stomach reconstruction?

I first had two different types of lung cancer in my left lung. Had surgery to remove part of lower lob. Then, within a year, I was diagnosed with esophageal cancer. A surgery was planned. It ended up being a 12 hour surgery with a second surgeon being called in for last 2 hours I ended up in the ICU for 5 months! Had to have a tracheotomy, be on a ventilator, and was in a hospital bed because I had to feeling in my legs. So for 5 months, I couldn’t talk, drink, eat, breath or be helped up. It was the most traumatic thing I have through. I had sepsis and a long list of other things. My family was told my chances of survival didn’t look good. Has anyone else had the type of surgery where the cancer is cut from esophagus, the stomach pulled up to replace esophagus that was cut out? Would love to hear how your experience was. Thank you so much for letting me vent

How do you stay positive during stage 4 cancer treatment?

New to this, old hat at the immune therapy and chemotherapy treatment for stage 4 esophageal cancer. My cancer spread to a large portion of my lymphatic system. Been on opdivo plus Oxaliplatin plus chemo. Most of the lymph nodes responded really well. My pet scan almost 3yrs ago, I was told I lit up like a Christmas tree. Most are no longer lit up at all. A few stubborn ones but I'm still walking on the bright side. I never had a symptom of cancer. Got tired really tired. Then all the sudden real 24hr a day pain. Went to my Dr. Thinking I caught something and after ct scan it was found. My motto has been from the start: This cancer was found by accident, I will get past it on purpose. If someone new to chemotherapy treatment has a question feel free to ask

What should I expect with stage 3-4 esophageal cancer diagnosis?

Hi everyone..My name is Judy..I am new to this group. We think my husband has Esophageal Cancer. He had the endoscopy done and the Dr told him he was sure the mass is malignant...still waiting on the biopsy. We live in FL and trying to get an appointment at Moffitt cancer institute in Tampa. The Dr thinks he is a stage 3, maybe 4. This is si scary, does anyone have suggestions!

How early was your cancer caught - any stage 0 or 1 experiences?

Hi ya folks, I was diagnosed with GEJ andocarsimona a little over a month ago. It's stage 4, having spread to two lymph nodes and my liver, what fun! I started Chemo on the 3rd of September. I'm on the FLOFOX "plan". I'm not really sure what to post or share here, as I'm still absorbing the whole "Aggressive Stage 4 Cancer." I had my first symptom in early July, an official diagnosis in August, and now Chemo in September. Anyone here get it caught early, like stage 0 or stage 1?

How can I manage esophageal ulcers with stage 4 stomach cancer?

New hear. I didn’t read the word “terminal” in any of your stories. But like most they caught this at stage four. The cancer is in my stomach, liver and esophagus. I have pain constantly. They gave me 3 months without treatment and 6 with. I believe they’re just trying to get me some quality of life at this point. Your stories are encouraging even though you’re still struggling in certain areas. I applaud all of you who aren’t simply laying down to be consumed by this disease!!! God didn’t put the spirit of “give up” in me either! Did anybody have an ulcer, to be more exact a bleeding ulcer in their esophagus? If I could get that thing healed then I wouldn’t need the frequent infusions of blood. I could probably get more nutrients in and my body could have more armor to fight with. It’s still going to be another week before I start treatment. And mine will start without an immunotherapy. I sincerely hope to be writing with good developments in the coming months as I will be looking for success stories in each of your cases. Terry out!

Anyone else diagnosed with lower esophageal cancer?

Just now joining with this app. About 1 yr ago, I was diagnosed with a malignant neoplasm of lower third of esophagus. Anyone else with this?

What Cancer Diagnosis Does Your Dad Have?

Not sure if this message is to you or public, but what diagnosis does your dad have? I have SRCC( signet ring) adenocarcinoma at the esophageal stomach juncture.

Support Groups for Coping with a Parent's Cancer Diagnosis

Looking for counseling groups to handle my dad's cancer diagnosis.