CommunitiesHER2+Living with Stage 4 Breast Cancer

Living with Stage 4 Breast Cancer

GA

Community Member

a year ago

Anyone here that is stage 4/MBC?

2
15 comments
Comment
accepted answer

Accepted Answer

Many people in this community are navigating stage 4 and metastatic breast cancer, and connecting with others who understand this journey can provide valuable support and shared experiences. This is a caring space where members often share insights about treatments, daily challenges, and finding hope along the way.

3+ patients found this helpful

JA

Community Member

10 months ago

Yes, I am stage 4 oligiometasratic breast cancer. I have Her 2 triple positive cancer with one small metastasis to the femur. I was diagnosed in May of 2019, and I have had no evidence of disease since 2020.

3
JA

Community Member

10 months ago

Me I am stage 4 MBC

CR

Community Member

10 months ago

I am stage 4 mbc. I was Ned for 9 years now it is in my bones. Pelvis, upper femurs, lower spine.

MA

Community Member

10 months ago

yes Her2+, ER+

0
SG

Community Member

10 months ago

Yes, I am also stage 4 HER2+

1
MA

Community Member

10 months ago

anyone her2+, er+?

2
GA

Community Member

10 months ago

Congrats

AM

Community Member

10 months ago

Yes, her2+ in the lymph nodes, growth on thyroid, and now there are issues with endometrial cells found on a paper. I'm just starting this adventure. I'm getting my port tomorrow. I did not want to have chemo treatments, but with the new finding (gyn), I feel i have no choice. If I wait for the trial appointment in late July, I will not be here or be terminal. So Chemo it is.

1
KJ

Community Member

10 months ago

Yes Georgia. I too have stage 4 mBC

GK

Community Member

10 months ago

I’m MBC too. Triple positive since 2021. Small mets to vertebra. Was on Phesgo and just switched to Hylecta. Very stable.

AM

Community Member

9 months ago

I am also HER2 triple positive, stage 4. My cancer journey started August of 2023. I was on docetaxel, Perjeta and Herceptin. I only did docetaxel till Dec of 2023.(I lost my hair from the docetaxel, but it started growing back within 3 months of stopping it. )Then just Perjeta and Herceptin, March of 2024 I went into remission but it only lasted 8 months. It came back with two little lumps in my right breast. DR started me on Enhertu in December. My petscan in june showed no active cancer. So I am in remission again. Chemo is forever. There is no cure for stage IV, chemo keeps the cancer dormant. We will always have cancer. Good luck 🙏

2
MA

Community Member

6 months ago

Your story is nearly identical to mine only I was diagnosed in October 2023. I’ve been no evidence of disease for maybe a year and a half. How are you doing now? Would love to collaborate.

CA

Community Member

6 months ago

Many people in this community are navigating stage 4 and metastatic breast cancer, and connecting with others who understand this journey can provide valuable support and shared experiences. This is a caring space where members often share insights about treatments, daily challenges, and finding hope along the way.

KJ

Community Member

4 months ago

Yes I am stage 4 mBC

KJ

Community Member

4 months ago

On KISQALI , Fluevestrant, and exgevia. Been doing treatments for a year. Doing well on this regime of meds.

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