HER2+

How to manage multiple symptoms with metastatic breast cancer?

I have metastatic breast cancer with bone metastases and I'm dealing with several challenging symptoms right now. I'm experiencing severe fatigue, shortness of breath, depression, anxiety, and mouth sores. My oncology team is working on adjusting my treatment plan to help manage these symptoms better. I know these symptoms are common with metastatic breast cancer and its treatments, but I'm feeling overwhelmed trying to cope with everything at once. I'd really appreciate hearing from others who have been through similar experiences. • How did you manage multiple symptoms happening at the same time during your treatment? • What strategies or routines helped you get through the toughest days with fatigue and other side effects?

Has anyone experienced severe digestive issues with Perjeta treatment?

I’m on Enhertu and Perjeta. I’m reacting to Perjeta in that I can only eat bone broth as any food creates cramping and diarrhea. I am starting my 2nd treatment. Anyone else have this problem?

How did you manage paclitaxel and Herceptin for HER2+ breast cancer?

I have stage I HER2-positive breast cancer and I'm receiving paclitaxel plus Herceptin (trastuzumab) after surgery. My care team explained that the paclitaxel works to stop cancer cells from dividing while the trastuzumab targets the HER2 protein in my tumor type. They mentioned this combination helps prevent the cancer from returning. I know fatigue and infection risk are possible side effects, but many patients manage well with support from their care team. I'd love to connect with others who have been through similar treatment and hear about your experiences. • How did you handle the day-to-day during this combination treatment? • What tips or insights do you wish you had known going into it?

How are triple positive breast cancer survivors doing 3+ years later?

Hello, I just signed up for this site and I’m currently undergoing chemo for Triple Positive, Estrogen, Progestogen and HERS2 Positive breast cancer. I wanted to hear from others who have battled this type of cancer in the past and see how things are going 3 or more years after they were first diagnosed. Thank you, Lisa

Does anyone else get extreme fatigue spells after breast cancer treatment?

I finished chemo for triple positive breast cancer on March 26th. Then finished radiation April 21st. I am now getting Ogivri every 21 days along with Letrozole daily. I am always tired, but last week we had hurricane speed wind storms in Kansas and were without power for a week which was exhausting in itself. This week I have been overly tired and slept for 36 hours. Does anyone else experience these kind of spells?

How do you manage inflammatory colitis from Perjeta treatment?

Has anyone had Perjeta and how did you manage the side effects which ca be inflammatory colitis.

Can HER2+ breast cancer spread to brain with these symptoms?

Anyone have Stage 2 HER2+/ER+ go straight to their brain and nowhere else? My cancer was only in the breast (2.3cm) and after neoadjuvant treatment , no cancer left. , I am still in treatment — Herceptin and perjeta and Anastrazole . Last 2 weeks , I have had a head that is very “off”: dizziness/vertigo, worst fatigue ever (far worse than it has been for months ), random head pains , feeling like I am hungover or drunk or both, my eyes are super heavy , sometimes hard to keep my balance . Up and down days— sometimes I can function , sometimes not . I am convinced I have a brain metastasis — knowing that HER2 cancer frequently goes to the brain after the breast . Utterly terrified .

Has anyone had a port catheter that feels flipped or hard to access?

Hello has anyone had their port catheter feel like it is flipped or have infusion nurse say it feels like its flipped some and they have to feel around more to locate center of port but after having you cough and lay your recliner or lift arm they can access it but everything I go now I pray they will be able to access it and get my infusions done .This is my second port and it set deeper than the first port I had the nurse said it might be because I had some scar tissue in that area since my surgeon went thru same spot as where I had my first port ,so it like was like third time site was opened 1st port put in and had to be removed and surgery again about 14 months to put in second port. and she

Has anyone tried Enhertu for metastatic breast cancer? Side effects?

I was diagnosed with invasive lobular carcinoma HER+En- metastasized to my clavicle and a rib and the sternum. I’m 74. The traditional protocol would be too brutal for my age for me. My oncologist has chosen Enhertu once every three weeks and definitely. I haven’t started yet but well next week I’m having a port placed this week. I’m asking the community if they have had experience with this medication and what will the side effects of the experienced. I’m grateful for the community. My prayers are with all of us.

Has anyone with HER2+ breast cancer tried Enhertu treatment?

I have stage IV metastatic HER2-positive breast cancer. I just read about the FDA approving Enhertu (trastuzumab deruxtecan) for two new uses in earlier stages of breast cancer - both in the neoadjuvant setting for stage 2-3 patients and in the adjuvant setting for those with residual disease after initial treatment. While these specific approvals don't apply to my current situation since I have metastatic disease, it's encouraging to see this treatment expanding to help more patients. Enhertu is already approved for metastatic HER2-positive breast cancer like mine, so this news shows the continued success of a treatment that might be part of my care planning. I'd love to connect with others who have HER2-positive breast cancer at any stage: • Have you or your care team discussed Enhertu as a treatment option? • What has your experience been with HER2-targeted treatments in general? Link: https://markets.businessinsider.com/news/stocks/fda-approves-enhertu-for-two-new-breast-cancer-indications-1036166013