Discuss unique challenges of treatment (Herceptin, Perjeta, and Kadcyla) and side effect management.
33.3K membersHow do others cope with HER2+ breast cancer treatment?
Community Member
an hour agoI was recently diagnosed with Stage II, HER2-positive, hormone-positive breast cancer. My care team has outlined a comprehensive treatment plan that includes chemotherapy with targeted therapy before surgery to shrink the tumor, followed by surgery, and then additional treatments afterward to reduce the risk of recurrence. I'm feeling overwhelmed by all the steps ahead and would love to connect with others who have been through something similar. Your experiences and insights would mean so much to me right now. • What was your experience like going through this type of treatment sequence? • What helped you prepare mentally and physically for each phase of treatment?
Has anyone had Herceptin/Hylecta side effects?
Community Member
7 days agoHi does anyone take Herceptin /hylecta the subcutaneous injection for HERS positive. I will start getting this on October 16 .I was on biosimilar trazimera and did fine for 6 months and then they stopped making the formulary at Cancer Center they put me on Kanjinti and I got hives on both legs and pins and neddle sensation in legs and head and nose was itching so bad so I had to take 5 days off prednisone and I am ok now.Pray that I won't have an allergic reaction to Herceptin/hylecta. I want to finish if possible but at same time I am afraid at going thru and oh course have concern about my heart since this medication can cause heart issue and lung issues but so far after 3 echocardiogram while on targerted therapy I am ok heartwise.
Will my cancer come back after clear mammogram?
Community Member
11 days agoHi I had my Mammogram on September 28 2026 and it showed no signs of Malignant and I was just so elated and at the same time I am thinking will be this be like last time .I was first diagnosed in July 2023 and Started my chemos and keyturda to sink tumor and had my surgery in February and got a PCR .I was not able to do my radiation because I developed Adrenal Insufficiency after my surgery was put in two different hospital and I just didn't understand why they couldn't find out why i was so sick,weak,and barley able to walk went to a bigger hospital and that's when I was diagnosed with Adrenal Insufficiency near 0 cortisol level and had pneumonia also.So I came home and rested a couple of months to get my strength back and wentbin to getbport flushed.Al l was ok until September 27 2025 went in for mammogram and my surgeon found very small spot she did ultrasound and biospy to confirm it was cancer she removed the tumor and some surrounding tissue within 34 weeks and all margins were clear so I did my radiation and started on targerted therapy went back September 28 2026 and was told my Breast showed no sign of Malignant. I will still do my targerted therapy as long as my Echocarigram are ok.Praying for all and God be with us all.
Does Arimidex cause fatigue and joint pain?
Community Member
3 days agoI am wondering does anyone else feel tired after taking the hormone blocker anastrolze? I know I spelled it wrong! I have been taking it for a little over 2 yrs now. I am 70 and I have a small amount of shoulder joint pain but I do use a skiing machine and a rowing machine plus I do all my yard work so that alone can cause joint pain . I’m wondering does anyone take it at night ? I thinking maybe I should try that
Is anyone else experiencing burning, tingling, and hives on Kinjinti?
Community Member
5 days agoI am getting Kanjinti a biosimilar to Herceptin and it has started to make my legs to have a burning,tingling and itch and have hives on my legs ,my hair itch bad also.I will be discussing this with my Dr tomorrow has anyone else had this happen while on this medication.
How do I manage anastrozole side effects and bone health?
Community Member
12 days agoI have hormone-positive breast cancer and have completed surgery. My doctor recently started me on anastrozole as part of my ongoing treatment. I'm learning that this hormone blocker helps reduce the risk of my cancer returning by stopping estrogen production in my body. My doctor mentioned some possible side effects like hot flashes, joint pain, and bone changes, and said they'll be monitoring my bone health while I'm on this medication. I'd love to connect with others who have been through something similar and hear about your experiences. • How did you manage the day-to-day side effects from hormone therapy? • What do you wish you had known when starting this type of treatment?
How do I manage side effects from anastrozole?
Community Member
3 days agoI have hormone-positive breast cancer and have completed surgery. My doctor recently started me on anastrozole as part of my ongoing treatment. I'm learning that this hormone blocker helps reduce the risk of my cancer returning by stopping estrogen production in my body. My doctor mentioned some possible side effects like hot flashes, joint pain, and bone changes, and said they'll be monitoring my bone health while I'm on this medication. I'd love to connect with others who have been through something similar and hear about your experiences. • How did you manage the day-to-day side effects from hormone therapy? • What do you wish you had known when starting this type of treatment?
How do you manage multiple severe symptoms with metastatic breast cancer?
Community Member
21 days agoI have metastatic breast cancer with bone involvement and I'm dealing with a lot of challenging symptoms all at once. I'm experiencing severe fatigue, pain, mood changes, and breathing difficulties. It feels overwhelming to manage so many symptoms at the same time. My oncology team is aware and we're working on addressing these issues, but I know many people with metastatic breast cancer go through similar experiences with clusters of symptoms like this. I'd love to connect with others who have been in a similar situation and hear about your experiences: • How did you cope when dealing with multiple severe symptoms at once? • What helped you get through the most challenging periods with symptom management?
What new treatments are helping HER2+ brain metastases patients?
Community Member
a month agoDiscover how advancements in HER2+ brain metastases treatment, including drugs like lapatinib, are changing the outlook for patients with CNS breast cancer. https://outcomes4me.com/cancer-topic/her2-pos/her2-brain-metastases-why-newer-drugs-changed-the-outlook/

Outcomes4Me
HER2+ brain metastases: why newer drugs changed the outlook
Discover how advancements in HER2+ brain metastases treatment, including drugs like lapatinib, are changing the outlook for patients with CNS breast cancer.
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