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HER2+

Discuss unique challenges of treatment (Herceptin, Perjeta, and Kadcyla) and side effect management.

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Why am I getting photon radiation instead of proton for left breast cancer?

MW

Community Member

8 days ago

I discussed my assessment/ plan for type of radiation I will be getting For HER2positive cancer well I went in for a stimulation and to have marker put on body ,And have CT scan,I was getting a little confused because they were placing makers on my Right breast but my cancer is in Left breast,I asked why are you putting markers on Right Breast under my arm my cancer is in left Breast and then had markers put under left arm, on left breast in outer breast at near the center of chest and 2 marker on both sides,They said they were put in those places to be sure radiation beams will be in right direction,all very confusing to me .I thought i would get proton radiation because my cancer is in the left breast . I was reading for left Breast Cancer because Heart is in this area they try to use proton instead of photon and I look at plan its photon not proton, and i thought my radiation oncologist would at least go over my Ct scan and show me areas of cancer and lymph nodes that they will be getting radiation,because my surgeon got out the core of tumor and all margins were clear and all six pieces of tissue she took out around my core tumor was benign I am stage 1 with some lymph vascular invasive but I just don't want to be getting aggressive Radiation if i dont need it because as I told my oncologist radiologist I do see a cardiologist and want to protect my heart and lung area as much as possible.I am suppose to have five weeks of external beam radiation with MV6 photon also sounds pretty aggressive to me for a 1.4 mm tumor that was taken out and clear margins and all surrounding tissue my surgeon took out was benign. What are you all thought on this that have already had Radiation on left side for HERS positive cancer stage 1. I try to advocate for myself because there is a saying quality or quantity of life.I will do the radiation treatments just don't want to be over zapped and get bad burns or something that would cause my heart damage.

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How long does recovery take after severe chemo side effects from MM?

RE

Community Member

2 months ago

I was diagnosed with MM 15 months ago after fracturing my back 2 times a year apart, and then my sternum a year later. Two weeks after my diagnosis I began chemotherapy and after my second treatment my legs had swollen so bad I couldn’t walk shortly after that I couldn’t eat and my oncologist just kept pumping me with chemo. My potassium dropped really low (1.5-2.0) I was spending my entire day at chemo getting potassium infusions. The oncologist wasn’t the least bit concerned about the fact that I couldn’t walk or eat. She’d say well you’ve got to be eating and walking in order to get the sct. Needless to say this went on from June until October with me spending more time in the hospital than at home. Coming home from the hospital in October my husband and I made the decision to stop chemo and change oncologist. I had gone 4 months without eating surviving on sprites and water. My new oncologist said my health was too severe for chemo and the outlook was slim. Still in and out of the hospital until the first of may. I had a feeding tube put in and has since been removed. I’ve lost over 100 lbs. two weeks ago was told my mm is in remission and started back on a lighter dose of chemo last week. This is the longest period of time I’ve been out of the hospital at one time. I still can’t walk without a walker as of yet. And not sure how long it’s going to be before I get some sort of a normal life back. With that being said my oncologist says I still have a lot of healing to do from my first round of chemo but from my first visit up until now he’s very pleased at how far I’ve come because he wouldn’t have expected that when he first saw me. World Rehabilitate Clinic played a significant role in my healing process. This is a horrible disease my prayers are with you all.

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