HER2+

Has anyone experienced vision problems from chemo and Herceptin?

Is there anyone who suffered vision problem with chemotherapy and Herceptin injection therapy?

How do you manage severe diarrhea from Perjeta breast cancer treatment?

I am taking the perjeta Kanjinti taxotere and carboplatin and after my first treatment I had so much diarrhea, and when I say diarrhea I mean 15-20 times a day, I lost 10lbs in 3 days and was so tired and nauseous on top of that I had to go in on the 4th day and get fluids and then they adjusted my nauseous meds and got Imodium on board which helped some but I was still going 8-10 times a day so I did that for my first 3 treatments finally I had to do something about it. It was getting so ridiculous and I told them every time I went to the dr and when I went for my appt with my breast surgeon she said I cud come off the Pergeta but I obviously needed to stay on the other three which scared me a lil bit so then I talked to my oncologist she agreed I cud come off the pergeta and then I went for my 4th treatment and the diarrhea almost stopped almost completely now I still went some but nothing like I was cause I was taking 3-4 Imodium daily to keep it controlled. I still get the dry heaves at least once a day but that’s better to since they adjusted my nauseous meds! And after only 3 treatments my tumor shrunk from 5cm to 1cm so I felt comfortable coming off that! I go for my 5th treatment in two weeks and we r going to keep the perjeta stopped for now and see how my tumor does! I still get very tired after chemo but I can handle the tiredness. They said if fo some reason my tumor grows I cud try the pergeta again after im done with chemo and maybe the diarrhea won’t b so bad without the other meds. But I’m doing really good now just waiting to finish treatment so I can have my lumpectomy and radiation! But that’s my experience with the pergeta and if any of u r going thru the same thing u might mention that to ur drs. Hope this helps someone. I’m sure im not the only one to experience that. And something else happen to, after my 3rd treatment I went for my one week post chemo checkup that morning and by the afternoon my whole left side of my neck swelled and was extremely painful and they admitted me to the hospital and did a ct scan cause I was so scared my cancer had spread even though I still had had my checkup and I got got those results, and it end up being perotitis which is Inflammation and swelling of the parotid salivary canal glands, typically caused by dehydration, viral infections (like mumps), or bacterial infections. Symptoms include painful swelling in the jaw/ear area, fever, and thick saliva, so I spent 2 days in the hospital getting fluid for dehydration and strong antibiotics then went home on 14 days of augmentim-amoxi- clav And it went down to normal after about 5 days so have any of u ever experienced that? My dr said she had not ever had anyone do that before and we still don’t know what actually caused it! Thx for letting me share my experience! Clarissa

How bad are side effects with just Herceptin and Perjeta after chemo?

Hello! I’m half way done with TCHP!!! I was just wondering how bad are the side effects once you finish chemo and are only getting Herceptin and Perjeta? Does it seem to cause fatigue like the whole TCHP treatment? Does is still make foods taste weird?? I have 11 cycles after my chemo is finished. Thanks for sharing your experience!

Do I need genetic testing before starting targeted therapy for breast cancer?

Hi all I just wanted to know before you started targeted therapy did they do a genetic test for all in this group. I had a genetic test done in 2023 before I started chemo and Immunotherapy but when i was in remission until October of 2025 and I was told I had HERS positive cancer this time not triple negative as previous but They didn't mention anything about having another Genetic test before starting Targerted Therapy infusion just found out from someone else who said her oncologist said they definitely should do genetic testing before starting targeted therapy for Breast cancer she lives in another state and when she told me this i was like I have genetics test in 2023 but they didn't mention I should redo it again because my Cancer is different and already had surgery when my surgeon find it in october while it 1.4 cm and in stage 1 all margins clear and surrounding tissue was benign but i did four weeks of radiation and now am on Targerted therapy and they did the nuclear stress test for heart before i started as.this medication can cause heart and lung problem Will be getting heart test every 3 months and I do this therapy once every three week will have my third infusion on April 2 and have the nuclear stress test on April 8. The first test was good so i could start the targeted therapy. I am on Trastumzumab.

Is a 3.5mm brain nodule during chemo likely cancer spread?

I am Her2 positive, ER PR negative patient, stage 1A invasive ductal carcinoma. I got my eye problem during chemo, now completed 4th cycle of injection Palitaxel and herceptin therapy, I did MRI brain at 21 March and the report showed single contrast enhancing nodule 3.5mm at left frontal lobe. I have no neurological symptoms. Is it possible to be the spread to brain ?

Will Medicare cover Phesgo treatment for breast cancer?

I have er + Pr- her2 positive 3+ grade 2 local lvl + no lymph nodes involved, but my tumor was much bigger than they thought I had radiation treatment and now I’m doing a in a anastrole and a treatment called Phesgo which is very expensive. I’m in the middle of 18 treatments of had seven and they now tell me Medicare probably won’t cover it. Has anybody ever been on this? I’m financial help for it. Appreciate any direction or has anybody ever had Medicare pay for it? They didn’t deny me my hospitals just saying that they think that it’s not gonna be covered. It’s very expensive thank you.

How low was your hemoglobin before getting a blood transfusion?

I Had my second Infusion of Trastumzumab this week my Blood work looked ok WBC ok but my all My Red Blood counts are on the low side how low was all your Red blood counts like hemoglobin before you all received Blood transfusion I guess mine is not low enough yet and I am taking Iron pill daily was only taking 3 or 4 times a week but decided to increase to try to get my Red blood counts back up .I know some of our medication will cause Your WBC and RBC and platelets to go down but mine is ok just Red Blood Counts are all Low not off the chart low but hemoglobin was 10.Would appreciate any feedback on this when you all had to get Blood infusion.I do be fatigued and I have Adrenal Insufficiency as well and that causes fatigue.Thank you all and may God watch over us all .

Has anyone experienced port leaking saline under skin after chemo?

Has anyone had your port leak saline under the skin after treatment while flushing the line?Mine did last treatment and the area around port was swollen and sore for several days.It is now red but no fever.

Is Mounjaro safe to take with HER2 positive breast cancer treatment?

I had her2 triple positive breast cancer. I went through radiation and chemo and now on anastrozole, no lymph node involvement. My question is does anyone take Manjuaro with Her 2 triple positive breast cancer and if so did the doctor say it is safe

What helps with severe constipation during Enhertu treatment?

I am on enhertu and nothing helps with constipation. I tried laxatives, senna, prebiotics and probiotics, prunes, cherry juice, senna…so much senna, protease, eastern medicine herbs for constipation. Any ideas on how to help?! I feel like my onc team is out of ideas and popping once a week is not helping :/ Anything help with enhertu constipation for anyone?