Discuss unique challenges of treatment (Herceptin, Perjeta, and Kadcyla) and side effect management.
32.6K membersHow can I prevent chemo mouth sores after treatment?
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3 days agoMouth Sores from Mucositis. I experienced terrible mouth sores after my first TCHP chemo treatment. My doctor prescribed the magic mouthwash, and I frequently rinsed with the salt and baking soda solution. While researching for other solutions, I came across the Chemo Mouthpiece. I contacted them and they were able to get me a kit which I started using during my second and third chemo treatment. surprisingly, I did not get any mouth sores since my first treatment so you may want to look into it if you are suffering from mouth sores https://chemomouthpiece.com/

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Should I stop Kadcyla after 12 cycles instead of 14?
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5 days agoI have HER2+, ER+ and PR-, on Kadcyla T-DM1 and finished 12 cycles and plan to stop at 13. Curious if anyone has had experience not completing the 14 cycles. Thanks
What's chemo plus Herceptin like for Stage I HER2+ breast cancer?
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5 days agoI have Stage I HER2-positive breast cancer and had a lumpectomy. My doctor mentioned that chemotherapy plus Herceptin (trastuzumab) is an option for me to help reduce the risk of cancer coming back. Since my cancer is Stage I, this treatment isn't required but could provide extra protection by working throughout my body. I'm trying to learn more about what this combination treatment is really like from people who've been through it. I'd love to hear from others with similar diagnoses about your experiences. • If you had chemo plus Herceptin for early-stage HER2-positive breast cancer, what was your day-to-day experience like? • What helped you manage treatment and what do you wish you had known beforehand?
Does chemo cause red itchy skin on face and neck?
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11 days agoDiagnosed Idc Feb .. in treatment . Has anyone had there skin turn red and itchy . My face and neck have turned red . Wondering if it goes away .
How do you manage severe diarrhea during cancer treatment?
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5 days agoI'm dealing with very severe diarrhea during my cancer treatment. My oncology team advised me to contact them right away when it got this bad, and they're helping me manage it and prevent dehydration. They mentioned this can be a serious side effect of many cancer treatments and may need treatment adjustments or supportive medications. I'd love to hear from others who have experienced severe diarrhea during their cancer treatment. It feels overwhelming right now, and I'm hoping to learn from your experiences. • How did you and your care team manage severe diarrhea during treatment? • What helped you get through the worst of it, and did things improve over time?
Has anyone had a good experience with port placement surgery?
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5 days agoHave you had a positive experience after port placement? (Please, only share good experiences). Thank you friends!💗
How to manage multiple symptoms with metastatic breast cancer?
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3 days agoI have metastatic breast cancer with bone metastases and I'm dealing with several challenging symptoms right now. I'm experiencing severe fatigue, shortness of breath, depression, anxiety, and mouth sores. My oncology team is working on adjusting my treatment plan to help manage these symptoms better. I know these symptoms are common with metastatic breast cancer and its treatments, but I'm feeling overwhelmed trying to cope with everything at once. I'd really appreciate hearing from others who have been through similar experiences. • How did you manage multiple symptoms happening at the same time during your treatment? • What strategies or routines helped you get through the toughest days with fatigue and other side effects?
Has anyone experienced severe digestive issues with Perjeta treatment?
Community Member
15 days agoI’m on Enhertu and Perjeta. I’m reacting to Perjeta in that I can only eat bone broth as any food creates cramping and diarrhea. I am starting my 2nd treatment. Anyone else have this problem?
How did you manage paclitaxel and Herceptin for HER2+ breast cancer?
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25 days agoI have stage I HER2-positive breast cancer and I'm receiving paclitaxel plus Herceptin (trastuzumab) after surgery. My care team explained that the paclitaxel works to stop cancer cells from dividing while the trastuzumab targets the HER2 protein in my tumor type. They mentioned this combination helps prevent the cancer from returning. I know fatigue and infection risk are possible side effects, but many patients manage well with support from their care team. I'd love to connect with others who have been through similar treatment and hear about your experiences. • How did you handle the day-to-day during this combination treatment? • What tips or insights do you wish you had known going into it?
How are triple positive breast cancer survivors doing 3+ years later?
Community Member
a month agoHello, I just signed up for this site and I’m currently undergoing chemo for Triple Positive, Estrogen, Progestogen and HERS2 Positive breast cancer. I wanted to hear from others who have battled this type of cancer in the past and see how things are going 3 or more years after they were first diagnosed. Thank you, Lisa
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