HER2+

Are there alternative cancer treatments when chemo causes severe side effects?

All chemo i have had has resulted in hospitalization and 3 x near death. Kadcyla caused mu platelets to drop to 20 and I bled from almost every portal in my body. I also at same time developed Acute Hepatitis ( non infectious type) but serious. I have lost vision in both eyes, have rashes, hives, lost of taste, loss of hearing, ringing in ears, insomnia, inability to swallow at times. I developed gastric bleeding gastric ulcer and of course dehydration. Do not let them brush off side effects with you. Im on my way to zmDAnderson to explore if there is any Alternstive treatment that will not kill me.

Should I get chemo for small HER2 positive breast cancer tumor?

I am HER positive and HR positive. My tumor was very small. They told me since my tumor was so tiny and I had a mastectomy that I did not need any chemo just tamoxifen. I am scared that I am making a mistake not getting chemo but they said chemo is very toxic and would be overkill. Ugh. So hard. Anyone else HER positive with no chemo or herceptin.

Why do smells bother me during chemo and will this go away?

Since starting chemo, I have developed a dislike of most smells. I have that "chemo smell" trapped in my brain so I am afraid that even after the chemo stops, I will relate all of these smells to this time period in my life. Does anyone have any input?

HER2+ breast cancer after chemo and surgery - Herceptin only experience?

Hi everyone 🤍 Is there anyone here who, after neoadjuvant chemo and surgery, had HER2-positive breast cancer (ER/PR-negative, node-negative) and was prescribed only Herceptin? In my case, Herceptin was recommended, but capecitabine (Xeloda) tablets were also suggested. After reviewing the available data and considering my pathology (ypT1aN0, RCB-I), I decided not to take capecitabine, as I couldn’t find strong evidence that it improves outcomes in this low-risk setting, while it does add systemic toxicity. I’d really appreciate hearing about your experiences and what treatment plan you followed. Wishing everyone healing, strength, and good spirits 💕

Has anyone done 6 months of Herceptin instead of 12 for HER2+ breast cancer?

Has anyone done 6 months of Herceptin instead of 12 months for hers 2 positive hormone negative stage 1 grade 3 ?

What are the worst side effects after first chemo treatment?

Hello, had first round of chemo, the side effects are horrible.

What should I expect when joining a cancer support community?

Hello everyone I’m new how’s everyone

What to do when oncologist won't listen to treatment concerns after complications?

So I was told may 6th 2025 HER2 positive, PR negative left breat with Ki 67 around 30 to 40 % went through all the chemo then had double mastectomy end of Oct. Ended up in hospital for 2 weeks was sent home and told to come back every day for a week to change out dressing which I did. Went every day at noon now into the third week go back to doctor and even though fluid was still in drains he pulled them out say your good to go finish up the rest of week at hospital by Saturday left side was red by Sunday not feeling well go to hospital and get admitted with infection but now my kidneys start failing so they transport me to another hospital for dialysis thinking it was temporary well fluids worked they called in infection deasise control in hospital two weeks for antibiotics from absess on right side. I asked about left side wanted surgeon to look at it they brushed it off. Finished antibiotics and they sent me home my left side turned red again wasn't feeling well only home two days go back to hospital and poof admitted again this time left side absess bust and I have sepsis the absess was 7 inches long and 6 inches deep which led to kidney complete failure. Now back in hospital total time in 9 1/2 weeks finally get out with wound machine attached and dialysis 3 days aweek 5 hours each time. 3days for wound care i have now been out of hospital since Christmas and just starting to feel better wound machine is off my oncologist now wants to put me back on herceptin and pertjeta even though my the biopsy came back saying they got all the cancer and lymph nodes out and I am clear and in remission. I told him I have decided I no longer want to be on that as I just feel my body can't handle anymore he seems to not want to listen saying this is just preventable medicine to keep it from coming back. So then he tried to compromise saying just take the herceptin sorry so long but has anyone else had problems where a doctor just would not listen even though he keeps saying I hear what you are saying.

Will cancer come back after lymph node recurrence?

Just more knowledge as canver came back in my lymph nodes

What to expect with Herceptin and Taxol treatment?

I did herveptin and taxol