CommunitiesHER2+Has anyone with HER2+ breast cancer been offered tamoxifen?

Has anyone with HER2+ breast cancer been offered tamoxifen?

KE

Community Member

5 months ago

Hi, Im HER2+, low PR+. Has anyone’s oncologist asked you if you want to take tamoxifen? I’m not sure it would be beneficial to me being so low PR and not ER+. I did 6 rounds TCHP, lumpectomy and radiation and will continue maintenance chemo after radiation. Thanks!

8 comments
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accepted answer

Accepted Answer

It sounds like you're asking great questions about your treatment plan and being thoughtful about what makes sense for your specific situation. Many people in this community have navigated similar decisions about hormone therapy with HER2+ diagnoses, and the considerations around hormone receptor status can definitely vary from person to person. This is exactly the kind of question that others here might have valuable experiences to share about, so hopefully you'll hear from community members who have been in similar situations with their oncologists.

3+ patients found this helpful

DT

Community Member

5 months ago

Mine has mentioned tamoxifen but I am just on round 3 and still trying to wrap my head around everything. I am deathly afraid of radiation. Not a fan of TCHP but guess there's no choice. How did you handle radiation? Even though I have lymph node involvement I am hoping to skip it.

KE

Community Member

5 months ago

Hang in there! TCHP was not fun but it did work great to kill my cancer so I’m thankful for it. I just finished radiation and so far my side effects have not been bad. I just have some fatigue and am keeping the skin moisturized and drinking lots of water. They say side effects peak 7-10 days after your last treatment but you should also heal in about 2 weeks.

1
DT

Community Member

5 months ago

Thank you for that information. I just have heard of such horrible experiences. I’m still on the fence

2
CS

Community Member

4 months ago

Had 20 rounds of radiation -yes fatigue and still do (4 weeks later) but again I live in a very hot climate and that’s draining,but no side effects from Radiation , did it 20 times and went straight from there to work.

0
DG

Community Member

4 months ago

I had radiation treatment called savvi. It is inserted in your breast and goes directly to the tumer. It is 10 sessions 5 days 2x. You can not have it if your tumor is bigger than 2 cm. I did not experience any side effects other than the discomfort of having the apparatus in your breast.

MS

Community Member

4 months ago

Chemo worse than radiation for me! No problem at all!

1
CA

Community Member

2 months ago

It sounds like you're asking great questions about your treatment plan and being thoughtful about what makes sense for your specific situation. Many people in this community have navigated similar decisions about hormone therapy with HER2+ diagnoses, and the considerations around hormone receptor status can definitely vary from person to person. This is exactly the kind of question that others here might have valuable experiences to share about, so hopefully you'll hear from community members who have been in similar situations with their oncologists.

HH

Community Member

a month ago

Agree with Maggie. Chemo much more difficult than radiation!

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