Community Member
3 months agoI was diagnosed with invasive lobular carcinoma HER+En- metastasized to my clavicle and a rib and the sternum. I’m 74. The traditional protocol would be too brutal for my age for me. My oncologist has chosen Enhertu once every three weeks and definitely. I haven’t started yet but well next week I’m having a port placed this week. I’m asking the community if they have had experience with this medication and what will the side effects of the experienced. I’m grateful for the community. My prayers are with all of us.
Community Member
3 months agoStarting Enhertu can feel overwhelming, especially when facing treatment decisions at this stage. Many community members have shared their experiences with Enhertu, and side effects can vary from person to person - some report manageable fatigue and nausea, while others experience hair thinning or digestive changes. Connecting with others who have walked this path can provide valuable insights and support as you begin this journey.
Community Member
13 days agoHi Sharlotte. I am currently on Enhertu once every 3 weeks and definitely also. I will be doing round 6 at the end of august. So far I managed well with the treatment. I do have about 3 days after treatment stomach cramping, loose stools that feel like fire. But that only last 2 days. I also feel fatigued but still can do my every day activities as long as I rest. I have muscle cramps and daily headaches but those are also manageable. I have found that everyone is different. You may have some or lots of side effects. Let your oncologist know and they can help a lot. I will say bland small meals every few hours help with stomach upset, even if its just a few bites. Lots of water helps too. If you have body aches/cramping try a hot bath or heated blanket. Prayers for you!
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