From HER2 Positive to DCIS: Has Anyone Experienced a Changed Diagnosis?

Is it possible you are HER2+ with DCIS?

I was first diagnosed with DCIS, stage 0, grade 3. After my second lumpectomy (unclean margins), I was told the cancer was now Invasive HER 2 positive. Then I had a mastectomy, 12 rounds of chemo with “Herceptin” and “Taxol”. I am now on maintenance of “Herceptin” for an additional 9 months but every 3 weeks instead of every week. So I’m guessing you can have both, but I’m thinking an error was made during your diagnosis, you went backwards - be grateful if it stays as DCIS!!!!!

So I turned out I do have DCIS and NOT HER2 +

Get another opinion! Fast.

I'm already on it

2nd opinions are a good idea

Thats weird I think i would look into that

Was this through a hospital in North Carolina? I know there are some hospitals in North Carolina. That erroneously told people they were her 2too positive.

Changes in cancer diagnoses can happen as doctors gather more information through additional testing, biopsies, or consultations with specialists. This kind of diagnostic evolution, while confusing and stressful, occurs when medical teams want to ensure the most accurate diagnosis and appropriate treatment plan. It might help to write down questions for your medical team about what led to this change and what it means for your next steps.