Community Member
5 months agoGetting ready to start anastrazole and kisquali. I've already been thoroughly scared by the pharmacist about all of the potential side effects. And I know that "everybody's different ". But what's the reality? What should I expect?
Accepted Answer
Starting a new treatment can feel overwhelming, especially when faced with a long list of potential side effects. Many people in this community have shared their experiences with these medications, and while everyone's journey is unique, connecting with others who understand what you're going through can provide valuable perspective and reassurance. Consider reaching out to fellow community members who may have insights to share about their own treatment experiences.
3+ patients found this helpful
Community Member
5 months agoI started my Anastrozole about 7 weeks ago and it is honestly menopause x10 compared to my original menopause...hot flashes are more intense and the mood changes are there but it is cope able or for me it is...When I feel them coming on I get my spray bottle with water in it and start misting myself and the mood changes I have my hubby do a "special" sweet statement...He says...Just remember I will always love you....and his smirky smile reminds me it is time to rethink and control my own moods...hope this helps some...hugs and stay strong đź’ž
Community Member
5 months agoI started Anastrozole 4 weeks ago. It’s hot as can be here so I can’t tell if it’s the weather or the drug that is causing hot flashes. Next week I will be in a hotel 4 days straight with A/C for work and will monitor my condition. I feel like someone’s crazy aunt!
Community Member
5 months agoOk
Community Member
5 months agoSusan, I spent a year on Arimidex, it was wicked, hot flashes, joint pain, especially wrist & thumb joints. I tried herbal supplements and Embr Wave along with acupuncture, they all helped. Now I’ve switched to Exemestane. The hot flashes are much improved bed, but not gone. The joint pain is less, plus sleep has improved. It’s important to talk to your doctors and keep positive. But everyone is different, so stay open with your docs! Best of luck to you!
Community Member
5 months agoGood evening I've been on anastrozole since October of last year and the problem I have is the hot flashes and joint pain but just take it one day at a time.
Community Member
5 months agoHerbal supplements from Bonafide, “Thermella” are worth a try. No plant hormones. My oncologist recommended, but always check with your doctors. The Embr Wave “watch” is an external item worn on your wrist also helps. Google the device. Plus a fan to wear around your neck all are helpful coping. Please keep in tune with your team, and keep a positive outlook in your journey!
Community Member
5 months agoHi. I started anastrozole in Nov of 24. The only side effect I've had so far is hot flashes which are bearable. I stArted Kisquali in March of 25. My WBC and neutrofils are always extremely low on my off week and I usually have to wait 10 to 14 days before I can restart. Other than that the fatigue has been a problem for me but if I exercise on a routine basis I feel better. Best of luck to you as you start these new drugs.
Community Member
4 months agoI've been on arimidex for a year. Joint pain is hard, I also have arthritis. I exercise and take supplements that help a bit. Hot flashes are not too bad. I also go to chiropractor.
Community Member
4 months agoI’ve only been on kisqali for 3 weeks and they took me off of it to see if my liver function goes back to normal by the end of this month. That’s been the issue is how it is affecting my liver. I have had the usual side effects such as fatigue, hair loss (the plus side is I don’t have to shave), lots of mouth sores. I’m not a fan of this one but if one can tolerate it, then it’s better than dealing with cancer.
Community Member
4 months agoI posted that I was going on a work trip. It was 90 degrees plus and I was in a/c all day and night. No noticeable hot flash issues. I came home on Friday and tested positive for Covid on Sunday! It’s mild but what the heck. I am off all drugs for the moment except for Covid. I will keep you all posted.
Community Member
4 months agoPrayer Sandra 🙏. And lots of huge hugs 🤗
Community Member
4 months agoAnd so here I am today. I was on Paxlovid for Covid so I stopped all other drugs. That drug is evil but I took it anyway. Hot flashes and more. Ugh. As I sit here tonight, off of Anastrozole for 10 days I realize I have NO Hot flashes and it’s been 95+ here for 3 days. Hard to explain but I feel normal. Given my unexpected break I will go back on Anastrozole but with caution and the caveat that I need to consider my well being. Just my thoughts. We shall see.
Community Member
2 months agoStarting a new treatment can feel overwhelming, especially when faced with a long list of potential side effects. Many people in this community have shared their experiences with these medications, and while everyone's journey is unique, connecting with others who understand what you're going through can provide valuable perspective and reassurance. Consider reaching out to fellow community members who may have insights to share about their own treatment experiences.
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