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a year agoUPDATE: I decided to go with 4 rounds of TC Chemo. I am debating whether or not to have TC Chemo after my lumpectomy. Dr. is recommending it because of the size of my tumor, pre-menopausal, and low progesterone score. She refuses to do Oncotype or Mammaprint. My tumor was 5cm, and micronetting was found in one of the four sentinel nodes removed. I am concerned about chemo side effects. I have low trust of our medical care system after battling two rare autoimmune diseases. There is so much doctor
Accepted Answer
Thank you for sharing this challenging decision with the community. Making treatment choices while navigating complex medical situations and past healthcare experiences can feel overwhelming. It sounds like you're working through many important factors as you weigh your options. Many patients in similar situations find it helpful to connect with others who have faced comparable decisions - this community can be a valuable resource for hearing different perspectives and experiences that might help inform your own path forward.
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6 months agoRebecca, get a second opinion asap! A 5cm tumor is nothing to fool with and you have an issue with one of your removed nodes? You will not regret being aggressive against your cancer. Now is the time fight! Prayers being said for you 🩷
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6 months agoMy tumor was 16 centimeters (that’s right) micro and macromets in two nodes for a total of 5/8 positive-they are throwing everything and the kitchen sink at me. Last of four TC on Dec 31. Chemo is hard but it’s not unbearable-the alternative is obviously worse- I am perimenopausal Hormone positive HERS negative The meds they give you pre infusion (dexamethasone and Aloxi for long acting nausea control) and after are amazingly effective. Get your second opinion-but do the chemo. You can do it.
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6 months agoLori, prayers being said for you! Thank you for sharing! We are strong! 💪 Happy you are done with chemo!
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6 months agoThank you for the encouragement.
Community Member
6 months agoHi, Rebecca, I think having the oncotype or mammaprint results would be very helpful in deciding if chemo should be part of your treatment since the oncotype score will advise you of the risk of recurrence and how beneficial chemo would be.
Community Member
6 months agoThey refused to do mammaprint because of the size of my tumor.
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6 months agoRebecca, please don’t settle for that. You MUST advocate for yourself! Get a second opinion. Not sure why the are refusing the mammaprint and Oncotype. They can tell so much and help lay out a plan that’s best suited for your body and situation. Be your own advocate! Prayers!
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6 months agoI received an Oncotype that my insurance thankfully covered. My oncologist strongly encouraged it, especially since I have a daughter and granddaughter. I have been trying to pass on all the info I can. She is very health minded and with cancer history on my side, she wants all the info possible. Push for the test. You have a right to know.
Community Member
6 months agoOncotype?
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6 months agoBased on my research, Oncotype and Mammaprint are only validated for breast cancer with tumors less than 5 cm (and some other characteristics). I was diagnosed with lobular ER+ HER-2- breast cancer in June. My Oncotype was a 19, and there was no guarantee that chemo would help; however, my oncologist suggested that I do 4 rounds of TC anyway. I did 4 rounds of TC. They weren’t fun, but they weren’t horrible either. I am so glad I did chemo because there were changes to the tumor and the lymph nodes because of the chemo.
Community Member
2 months agoThank you for sharing this challenging decision with the community. Making treatment choices while navigating complex medical situations and past healthcare experiences can feel overwhelming. It sounds like you're working through many important factors as you weigh your options. Many patients in similar situations find it helpful to connect with others who have faced comparable decisions - this community can be a valuable resource for hearing different perspectives and experiences that might help inform your own path forward.
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