Community Member
2 years agoI was fortunate to have landed with an excellent medical team from the beginning because I was trying to process the diagnosis of cancer. I am a person who researches everything and I interestingly found myself not researching at all. With every phone call that came to me, giving me the next step and options, I slowly began to accept this was really happening, and then I could start my wild inquiry. I know too many people who are dealing with one cancer or another yet I never heard anyone talk about the initial period when you receive your diagnosis, the dizzying effect it can have on the patient. I was assigned a health coordinator to make sure my treatments progressed. I was informed of all that was included and referrals that can be made: genetic testing, support groups, exercise groups, and psychological therapy. Even reconstructive surgery and tattoo specialists are included at no cost if needed. Yet, to accept any of these resources, I first needed to accept the initial diagnosis which was the best cancer diagnosis one could have: DCIS, Stage 0, grade 2. Further testing revealed HR+(ER+95%, PR+75%), HER2-. Everyone I know with a cancer diagnosis has a Stage 1 or higher.What helped you process your initial diagnosis?
Accepted Answer
That initial shock and disorientation after receiving a cancer diagnosis is something many patients experience, even with early-stage findings like yours. Processing such news often happens in waves - from that initial numbness where normal research instincts might shut down, to gradually accepting the reality and then moving into action mode. Many community members find it helpful to take advantage of the support resources offered by their medical teams, whether that's connecting with others who've been through similar experiences or working with counselors who specialize in helping patients navigate these feelings.
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Community Member
8 months agoTime helped me. Then education, getting a good care team in place, finally getting some healthy habits in place (no alcohol, healthy foods), exercise, counseling. And understanding my diagnosis, like you I have DCIS, grade 2, but at a stage 1, tumor was 1.6 cm. Oncotype score came back with excellent numbers, 2% for recurrence, 2% for chemo benefits (so only did radiation). I am 100% progesterone and estrogen positive and HER2-. I was fortunate to be in a study and did a one time radiation of 38 GYs. Tumor is shrinking. Doctors reassure me more than once that it has not spread to the lymph nodes (through blood work, Ultrasound, CT scan, etc). Lumpectomy pending for this fall. Of course on AIs. But yes, I needed the time to get through the first part of this. When you first get diagnosed there isn't anyone to hold your hand and walk you through it telling you what needs to be done. That lead to second guessing for me. All at a time when you want to do nothing but have someone take charge but that's when you have to get going and get your plan in place. It's all up to the patient. I had to get through that first I was angry. Not now though.
Community Member
8 months agoMy care team, husband and grown daughters, along with a very supportive extended family and friends helped me a great deal. I was diagnosed on April 2 with stage 2 grade 1. Met my care team the next week and in surgery for lumpectomy the following week. It was so fast I didn’t have a chance to digest it until recovery after my surgery which includes lymph nodes biopsy. Lymph nodes positive so now getting prepped for 19 sessions of radiation. My care team has been on it from day one. We’ve never experienced this in my family. We were / are quite surprised at the diagnosis. But the care team was so thorough, knowledgeable, supportive and so kind. My husband has been a compete angel through it all too. I am so blessed. All of this just gave me the strength and focus to take care of this. During recovery from lumpectomy, is when it all started to settle in. That’s when I made up my mind to get myself as fit as possible to beat this for good. 😊. No alcohol. More fruits and vegetables and steps to reduce stress and anxiety. Show my self a little love 💕 I wish the best outcome to everyone as they go through their journey. 💞
Community Member
4 months agoThat initial shock and disorientation after receiving a cancer diagnosis is something many patients experience, even with early-stage findings like yours. Processing such news often happens in waves - from that initial numbness where normal research instincts might shut down, to gradually accepting the reality and then moving into action mode. Many community members find it helpful to take advantage of the support resources offered by their medical teams, whether that's connecting with others who've been through similar experiences or working with counselors who specialize in helping patients navigate these feelings.
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