CommunitiesHR+ HER2-Update on Life After Stopping Cancer Medications

Update on Life After Stopping Cancer Medications

SM

Community Member

10 months ago

This is a general update... not in response to a specific question... 4 months ago, after a year on 2 different AIs and crippling, disabling joint, muscle pain... and a history of blood clots, thus Tamoxifen wasn't an option, I stopped all the meds and got my quality of life back... but I asked myself, what can I do in addition to lifestyle and diet changes if I am not on medications? The only thing left was to stop all alcoholic beverages ( based on latest warnings from former surgeon general)... That felt like a reasonable decision in view of the toxicity of alcohol when metabolized ...I don't know why/how I got breast cancer at age 78, but I did... I would love a longer life but I won't exchange quality of life for possible percentage increase in a few years... but I am also staying on top of all the latest developments in treatment, hoping that there will be better treatments with fewer side effects down the road- power and blessings to all of us challenged by this disease...

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accepted answer

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Thank you for sharing this thoughtful update about navigating treatment decisions and prioritizing quality of life. Many people in this community face similar challenges when balancing potential benefits with difficult side effects, and your approach of staying informed about emerging treatments while making lifestyle changes shows great self-advocacy. Your perspective on maintaining hope for better treatments in the future while focusing on what feels right for you now may resonate with others facing tough decisions about their care journey.

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LH

Community Member

6 months ago

78 myself. Quality over quanity. Hormone blockers did not work due to blood pressure. I try to watch food with soy as that has estrogen in it. Eating better and walking. Having lung issues from radiation pneumonitis so on two inhalers. I have good days and fatigue others. I feel blessed it was caught a year ago and my scores were all low.

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CA

Community Member

6 months ago

You are both amazing, strong women. The joint side effects could cause you to fall and have a terrible injury. I was doing great on anastrozole till 3.5 months and then horrible joint paint happened suddenly. I fell 3 times that week , I'm 52 but very fit. I can't imagine that happening to either of you. I'm glad you're stay safe. Exercise, nutrition, and happiness!

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SM

Community Member

6 months ago

Let me add I remain physically active... 2 weeks before my diagnosis in 2023 I was bike riding in Cuba... the year before it was 500+ miles along "El Camino" in Spain.. and I just returned from biking the Florida Keys... sports and bike riding have always been a part of my life... If I can't keep doing that, well, it's not an option 👍🏽my 80 th birthday is coming up.. I continue to work 20-30 hours a week and I am hoping to bike/boat Croatia later this year... one last thing... as motivation to successfully complete all my cancer treatments, I bought myself an e-bike ... so my secret...live your life not your age...

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MN

Community Member

6 months ago

Is this for metastatic breast cancer?

CA

Community Member

6 months ago

I would love to do the El Camino. I'm Catholic.

SS

Community Member

6 months ago

I got breast cancer at 77 and I’m in total agreement with you. I hardly drank alcohol but have given it up completely. Here’s hoping that with good diet and exercise plus a positive attitude, I can live the rest of my life with good health.

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CA

Community Member

2 months ago

Thank you for sharing this thoughtful update about navigating treatment decisions and prioritizing quality of life. Many people in this community face similar challenges when balancing potential benefits with difficult side effects, and your approach of staying informed about emerging treatments while making lifestyle changes shows great self-advocacy. Your perspective on maintaining hope for better treatments in the future while focusing on what feels right for you now may resonate with others facing tough decisions about their care journey.

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