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a year agoWhat if anything has anyone found to be helpful for relief from neuropathy?
Accepted Answer
Neuropathy is a challenging side effect that many in the breast cancer community experience, and there are several approaches that people have found helpful for managing symptoms. Some find relief through gentle exercises, physical therapy, certain medications prescribed by their oncology team, acupuncture, or supportive therapies - though what works best can vary from person to person, so it's always good to discuss options with the healthcare team to find the right combination of treatments.
3+ patients found this helpful
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6 months agoGabapentin (3x daily).
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6 months agoGabapentin didn’t work for me. Also on Cymbalta and Lyrica. Am going for neuropathic pain therapy twice a week now. So far nothing’s helping. It’s really bad in my hands, not as bad in my feet.
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6 months agoRuth, they had me on gabapentin 300 mg 3x/day, didn’t work so we stopped.
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6 months agoKaren, the radiologist said to stay away from Lyrica, known for weight gain. Have you had any experience with that? I have an appointment with a neurologist in Feb.
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6 months agoNo. I had heard that, too. But I’m on Jardiance and Mounjaro for diabetes so that probably helps. Don’t have much of an appetite.
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6 months agoPyridoxine (basically vitamin B6). Helped with the bad pain in my feet but the numbness remains (7 years on). Not too bad and definitely copeable. Was on it for 3 years. A friend of mine took amytriptyline for a week or two and it stopped the pain for her. Good luck. It’s not pleasant
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6 months agoThank you Sam, I’ve been taking a B complex - nothing seems to work for me
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6 months agoMy nurses recommended L-Glutamine. It helped. I do a lot of sensory stuff with my hands, knitting with textured yarns, gardening, washing with textured clothes. I also find hot wax treatment like they use in spas helps temporarily. I've heard infrared treatments have helped some.
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6 months agoFrancie B is L-Glutamine a vitamin? How many milligrams ?
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6 months agoSusan, it's an amino acid. Got at vitamin/health food store. I got powder form and mixed 3 tbsp in a glass of juice. It is about 5 g per tbsp.
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6 months agoWisemen Healing Balm. It’s available on Amazon. I have neuropathy from a broken back and it’s the only thing that’s shut the nerves up. Apply directly to the affected area and in about 30 minutes you’ll have relief. Also consider compression socks and compression gloves. Crazy Compression has some fun patterns.
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6 months agoI was offered Gabapentin that I used a short time post op double skin and nipple sparing mastectomies with saline implants when I have burning pain in my chest as nerve endings were healing. I’ve had chronic feet neuropathy from pernicious anemia that is worse at night, but I find exercises to my feet, walking, warm showers… beneficial. If I can’t sleep I take one Tylenol PM that helps me now because I was dizzy on the Neurontin.
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6 months agoRed light therapy through a lymphedema specialist. My neuropathy was so bad that I could barely walk at the end of most days. I can now wear almost any kind of shoe and have no problem with normal days being on my feet. My finger tips are probably 75-80% better too with feeling.
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6 months agoIrene I wish that I could take Tylenol Pm and that I could go to sleep. I have tried almost everything. It seems like my pain is worse at night.
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6 months agoNeuropathy pain is worse at bedtime. I have had that since pernicious anemia diagnosis and cancer treatments make it even worse. I’m offered Neurontin/ Gabapentin but it makes me too dizzy.
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6 months agoI’m wearing compression socks and does help. My feet stay warmer when I have them
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6 months agoMy mother had neuropathy in feet from diabetes. Gabapentin helped but made her feet swell. She switched to lyrica which helped. She also used capsaicin cream
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6 months agoI'm scared to take Lyrica my dad took it and he was acting all crazy. It seemed to make him walk weired. I do want to buy a pair of compression socks.
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6 months agoDid you try acupuncture?
Community Member
6 months agoNo, I am limited wot what I can do with not being able to drive to appointments with the foot and hand pain. My appointment with neurology is Monday, I’m going to ask about everything you all suggested
Community Member
6 months agoI used compression socks and cymbaltA and helped alot
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6 months agoI did acupuncture and Chinese herbs when I did chemo and radiation in 2016/2017, and I have no peripheral neuropathy
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6 months agoLaura B, were they footless? I can’t stand the feel of any fabric or socks on my feet, especially the toes
Community Member
6 months agoHi, I use tens/massage and red light therapy booties, and a vitamin my oncologist recommended called Nervive. All from Amazon with the direction of a nerve doctor. Also turmeric. The combo works well and my neuropathy improved a lot. I’m not sure how to post links but I can try.
Community Member
6 months agoCymbalta 60mg taken once daily has helped me. Does not take it all away but has made it manageable. My Oncology nurse who also had neuropathy due to chemotherapy told me to wear socks at night to help with coldness and pain. It works for me.
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