CommunitiesIn Treatment For Breast CancerSeeking advice on Capecitabine treatment for TNBC

Seeking advice on Capecitabine treatment for TNBC

MR

Community Member

5 months ago

Hi…..diagnosed with TNBC Dec ‘24. I have gone through 4 months of chemo including red devil. Had lumpectomy 3wks ago and pathetic report was 98% complete response to chemo with 2mm tumor removed with one lymph node, and clean margins. Today I felt as if I was punched in the gut when oncologist said path report was bad news and that along with radiation I needed to do 8 months of oral chemo drug Capecitabine. Has anyone done this drug and what was your experience? Side effects? I’m devastated thinking about 8 months of this. I did cold capping before and kept most of my hair and now I’m told not to worry about that. I actually feel so much better and rebuilding strength and energy only to be told I will have more setbacks….again. 😢 Any thoughts are welcomed. Thank you!

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4 comments
Comment
accepted answer

Accepted Answer

It's completely understandable to feel overwhelmed by this news, especially when you were starting to feel stronger after your initial treatment. Many community members have shared experiences with Capecitabine, including insights about managing side effects and maintaining quality of life during treatment. Consider connecting with others here who may have walked a similar path - their firsthand experiences could provide valuable perspective as you navigate this next phase of your treatment plan.

3+ patients found this helpful

JS

Community Member

5 months ago

Have you gotten a second opinion?

SB

Community Member

4 months ago

I had to take Capecitabine for 5 months after treatment. I didn’t lose my hair and the side effects were minimal.

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MR

Community Member

4 months ago

Thank you Stacey! I’m feeling much less anxious about this.

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CA

Community Member

2 months ago

It's completely understandable to feel overwhelmed by this news, especially when you were starting to feel stronger after your initial treatment. Many community members have shared experiences with Capecitabine, including insights about managing side effects and maintaining quality of life during treatment. Consider connecting with others here who may have walked a similar path - their firsthand experiences could provide valuable perspective as you navigate this next phase of your treatment plan.

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