Seeking advice on Her2 positive breast cancer treatment

I've been very scared and anxious, too. You can use this app to track any side effects. Most side effects can be managed. I have not taken the drugs that you will be on, but plenty of other meds with side effects. Please take your journey with joy in your heart. I care, Ginny

I took the paclitaxol. Side effects for me were fatigue and hair loss.

I was on Paclitaxol for 12 weeks including Herceptin every 3 weeks. Made it through chemo alright but did lose all my hair. I had bilateral mastectomy with cancer in right breast and benign lump in left breast. Decided to have both breasts removed cause of family history. Had surgery Memorial Day weekend of last year 2023. I have 2 more infusions of herceptin left so I’ve been on it for a year. Chemo wasn’t too bad. Side effects of herseptin have been cold symptoms like runny nose, teary eyes, loss of taste, excessive saliva and fatigue at times. Other than that I feel fine and yes I did get my hair back nice and thick like before. Hang in there…you will get through it 😊!!!

I finished weekly Herceptin/taxol 3 months ago. I continue Herceptin every 3 weeks. Biggest issue was fatigue. Staying hydrated is super important and freezing hands/ feet to avoid neuropathy. The night after treatment, I could not sleep, always felt like I had a bad cold. Also, the steroids in your premeds may help keep you awake. The second night I would sleep forever. I also had minor symptoms like eye twitching, bloody nose (just a bit). I lost about 80% of my hair, but it’s growing back like crazy. All in all it wasn’t as bad as I believed it would be. Happy to answer any other questions you might have…

I just finished week 4 of Taxol. My infusions are on Thursdays and by Saturday the joint pain is horrific. The loss of taste is annoying. I have 8 more weeks of Taxol. Doc put me on meloxicam. Doesn’t help with the pain. Going to meet with the surgeon in a couple weeks. Mastectomy is a definite, but undecided on one or both. My cancer is a recurrence from 8 years ago. Lumpectomy and radiation at that time. My hair actually started coming back after my second cycle of AC. It’s peach fuzz, but it’s there. Getting too hot for scarves or wigs.

Starting treatment for HER2-positive breast cancer can feel overwhelming, and it's completely natural to have questions and feel anxious about what lies ahead. Many community members here have experience with similar treatment plans and understand the mix of emotions that come with this journey. The treatments mentioned are commonly used for HER2-positive cancers, and connecting with others who have walked this path can provide valuable insights about managing side effects and what to expect. Consider sharing specific questions about day-to-day experiences or symptom management to help other members provide the most helpful support and practical tips.