CommunitiesIn Treatment For Breast CancerShould I take Kisqali for early-stage breast cancer?

Should I take Kisqali for early-stage breast cancer?

SW

Community Member

7 months ago

My doctor is saying is should take the following regimen of lupron, letrozole, kisqali. I am early stage breast cancer with no chemo or radiation. Had a double mastectomy. I feel the kisqali is excessive and not worth the side effects for 1-2% decrease in recurrence. Per my onco type it’s a 5% chance of recurrence. This treatment was just approved sept 2024 by the fda. I do not want to be a doctors quota for this trial. She kept speaking about all the commercials for kisqali on TV. I’m 40 years old and side effects for kisqali are not great. Anyone with thoughts?

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accepted answer

Accepted Answer

Making treatment decisions, especially about newer medications, can feel overwhelming when weighing potential benefits against side effects. Many patients in this community have faced similar decisions about balancing statistical benefits with quality of life concerns. Consider seeking a second opinion from another oncologist to help clarify whether this treatment approach aligns with your specific situation and values - having another perspective can provide valuable insight when making such important healthcare decisions.

3+ patients found this helpful

SS

Community Member

6 months ago

I will be on anastrazole and kisquali after I finish radiation. If I remember correctly my cancer has an 8% chance of recurring. Im willing to do what it takes to give it the least possible chance of coming back.

DN

Community Member

6 months ago

I chose a lumpectomy. Likewise per my once types I have a 5% chance of recurrence. I am starting proton therapy on Thursday. I declined the AIs because the risk and side effects were not worth it to me. I’m 78, healthy and want quality of life. If you have a low onco score and had a double mastectomy that seems like a lot of medication. Then if you have side effects will you have to take things to mitigate those effects? You’ve already done radiation. Maybe get a second opinion?

SW

Community Member

6 months ago

I didn’t have to have chemo or radiation. I feel like this is a big pharma move to push all these meds. I was looking at diet change. That in its self makes up for what kisqali does for benefit.

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JG

Community Member

6 months ago

While the final choice is always yours, I think your age is playing into this. Pharma isn’t pushing anything. You can always try and if it’s bad discontinue. I was scared to take tamoxifen bc of everything you hear. I have no clue I’m on it!!! No hot flashes, sleep great AND I lost 11 lbs the first month on it. But again it’s your choice and I think your age is the reason. I’m early stage, lumpectomy and just tamoxifen I’m 51.

CS

Community Member

6 months ago

What’s an Als and an onco? People use these terms but not all of us know them making the posts hard to read Thanks

SW

Community Member

6 months ago

Aromatase inhibitor. This is a medication. Oncotype is the name of a test they do on the tumor to identify the risk of reoccurrence.

KJ

Community Member

6 months ago

I take KISQALI. I started the day after Christmas. Happy Christmas to me. Well anyway I am stage 4 metastatic breast cancer. This is my second time with cancer. I only had a 10 % chance of recurrence and yet here I am again so I really don’t think the doctors know what to do. They just prescribe a course of action and cross their fingers. I am 73. I had my first cancer at 60. I know I wish they would remove those commercials. The drug companies make enough money from us. KISQALI side effects aren’t great but in my case I’m praying it offers me time to live my life awhile longer. Good luck to you.

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TW

Community Member

6 months ago

🙏🏻

CA

Community Member

2 months ago

Making treatment decisions, especially about newer medications, can feel overwhelming when weighing potential benefits against side effects. Many patients in this community have faced similar decisions about balancing statistical benefits with quality of life concerns. Consider seeking a second opinion from another oncologist to help clarify whether this treatment approach aligns with your specific situation and values - having another perspective can provide valuable insight when making such important healthcare decisions.

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