CommunitiesIn Treatment For Breast CancerEndometriosis and Tamoxifen: Seeking advice on treatment options

Endometriosis and Tamoxifen: Seeking advice on treatment options

EL

Community Member

10 months ago

While being laid up from recent surgery to remove endometriosis, I read that it can continue to grow and Tamoxifen can increase those odds. I was diagnosed with DCIS in 2020 with lumpectomy and radiation. I should be coming to the end of my Tamoxifen treatment, but I’m only halfway. I opted to wait a year in the hopes of trying to have a baby. That didn’t happen, which is okay because I have my beautiful son & very grateful. I have had some form of illness since 2020. 2021 I was diagnosed with Celiac and in 2022 I found out that I had endometriosis attacking my organs. I had a hysterectomy (kept my ovaries) last January and last week had a colon resection and appendectomy to remove more endo. I’m upset that my oncologist never discussed how T can increase the growth of endo. I feel like I want to stop T all together. I get a breast MRI in between my mammograms, so I am checked every 6 months. Just wondering if anyone has had a similar experience with endo, and what you are doing for treatment?

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accepted answer

Accepted Answer

This sounds like an incredibly challenging situation, especially managing multiple conditions while navigating cancer treatment decisions. The intersection of endometriosis and tamoxifen therapy is something that deserves careful discussion with both oncology and gynecology specialists who can review the full picture of medical history and current health status. Many patients find it helpful to advocate for multidisciplinary consultations when dealing with complex treatment decisions that affect multiple conditions. Others in this community may have experience balancing similar treatment considerations and could offer valuable perspectives on how they approached these difficult choices with their medical teams.

3+ patients found this helpful

CA

Community Member

3 months ago

This sounds like an incredibly challenging situation, especially managing multiple conditions while navigating cancer treatment decisions. The intersection of endometriosis and tamoxifen therapy is something that deserves careful discussion with both oncology and gynecology specialists who can review the full picture of medical history and current health status. Many patients find it helpful to advocate for multidisciplinary consultations when dealing with complex treatment decisions that affect multiple conditions. Others in this community may have experience balancing similar treatment considerations and could offer valuable perspectives on how they approached these difficult choices with their medical teams.

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