Community Member
a year agoLet's talk osteoporosis please. If you have it, did you have it before cancer or as a result of cancer treatment? Did you get treated? How were the treatments? Side effects? I made the very difficult decision to have a zometa infusion. Difficult because doctors don't seem to believe in risks and side effects so you don't really get to make an informed decision by talking to them. I'm pretty sure that I am the first patient my provider has done ANY followup with after the infusion. She's completely shocked by the reaction I had despite the fact that if you read the drug facts I had a fairly typical reaction. (I had fever, flu like pain that I would class in the top five most painful experiences of my life. The literature suggests this usually only happens with the first infusion. Over the following week I had lymphatic reaction in the infusion arm that I treated with lymphatic massage.) I don't think providers who can't or won't have accurate risk benefits discussions with patients are actually allowing/getting informed consent
Accepted Answer
Thank you for sharing such an important topic and your experience with zometa treatment. Many community members face osteoporosis either before their cancer diagnosis or as a result of treatment, and honest discussions about side effects and treatment responses are valuable for everyone here. Your point about informed consent and thorough risk-benefit discussions with healthcare providers resonates with many patients navigating complex treatment decisions. Other members who have dealt with osteoporosis treatments may have insights to share about their experiences and how they approached these conversations with their medical teams.
3+ patients found this helpful
Community Member
6 months agoI was on herceptin,bones were always great, last year bone scan showed osteopenia! Said it was from Herceptin
Community Member
2 months agoThank you for sharing such an important topic and your experience with zometa treatment. Many community members face osteoporosis either before their cancer diagnosis or as a result of treatment, and honest discussions about side effects and treatment responses are valuable for everyone here. Your point about informed consent and thorough risk-benefit discussions with healthcare providers resonates with many patients navigating complex treatment decisions. Other members who have dealt with osteoporosis treatments may have insights to share about their experiences and how they approached these conversations with their medical teams.
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