Community Member
4 months agoToday I was the big day, I had my first round of chemo, it went better than expected. After talking to people, and reading what some of you have gone I was expecting the worst, but right now that only side effect I’ve had is hot flashes. But I’ll take that. So now I understand every one goes through treatment different, we are all unique and not all of us going to go through the same symptoms, so my advice is be prepared for the worst and expect the best. GOD BLESS
Accepted Answer
What a positive way to start this journey - your attitude of being prepared for challenges while hoping for the best is truly inspiring. Many people in this community will appreciate hearing that first treatments can sometimes go more smoothly than anticipated, and your reminder that everyone's experience is unique is so valuable for others who may be feeling anxious about their upcoming treatments.
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Community Member
4 months agoHi Salvador! Thank you for sharing this encouragement with others on here. We can all be guilty of making things out to be worse in our heads than what we actually experience. Sorry you are feeling 🥵 but I’m praying that continues to be the worst of it for you! We are so happy you are here and I hope you keep sharing as you move along with treatment and recovery. 💛Suzanne (Community Moderator)
Community Member
3 months agoAre you on folfox? I am and I am having terrible hot flashes. No one mentioned this side effect to me, so Im curious.
Community Member
3 months agoI'm on FOLFOX as well. No hot flashes, but big fatigue. I took a break from chemo to have colorectal surgery, which went well (thank goodness). I'll be resuming the next 6 cycles of chemo in about a week, and then surgery #2 is planned -- to address the metastasis in my liver. Hepatic Artery Infusion Pump - to deliver a higher dose of chemo directly to my liver, as opposed to more systemic. That's keeping me up nights, and my head is spinning! Oy!
Community Member
3 months agoYes I’m on folfox, I’m on my sixth round , the first day that I have it I feel really tired, but lately I’ve been having panic attacks, those are scary. Has anyone experienced this???
Community Member
3 months agoDo any of you on folfix have trouble sleeping? Im starting round 3 Tuesday and i have a terrible time going to sleep. I toss and turn til about 4 am and sleep til about 8 am every night. Im cold so i get a blanket 5 minutes later im so hot ive got sweat pouring off my face then im cold again. Its crazy.
Community Member
2 months agoWhat a positive way to start this journey - your attitude of being prepared for challenges while hoping for the best is truly inspiring. Many people in this community will appreciate hearing that first treatments can sometimes go more smoothly than anticipated, and your reminder that everyone's experience is unique is so valuable for others who may be feeling anxious about their upcoming treatments.
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