Community Member
a month agoJust checking in to see how everyone is doing? I was supposed to to start my first treatment since switching from AHN Cancer Institute to UPMC Hillman on Friday but it was delayed due to having to have my port removed. The wire going up to my neck was exposed, not sure if because the skin was so thin from losing all this weight or what happened. They sent me in through the ER then admitted me, started IV antibiotics for fear of infection. Anyway, I hate missing treatments, just causes more anxiety. Hope you all are doing well.
Community Member
a month agoPort complications can happen for various reasons, including changes in weight or tissue, and it sounds like your medical team acted quickly to prevent any potential infection. Missing treatments naturally creates worry, but taking care of the port issue now helps ensure safer treatment moving forward. Wishing you a smooth recovery and hoping others in the community can share their experiences with port-related challenges during their melanoma treatment journey.
Community Member
20 days agoHopefully everything is straightened out and your back on your treatment. I have my PRT scan Tues and I had my SIGNATERA/NATERA test done last wk. I hope everything is good ππ. My Mayo Clinic appointment on Az is 9/8. It time there
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20 days agoHi Jill, yeah had my port removed and got my first treatment in with Hillman on Friday. It went ok but was a long day. They switched me from the Opduolag to Opdivo and Yervoy. Doing both for 3 more treatments every 3 weeks then just the Opdivo every four weeks. How did your Signatera test and PRT scan go? Hope you are doing well
Community Member
20 days agoPET is this weds and test results hopefully the end of the week. Hope your treatment goes well.
Community Member
20 days agoKeep me posted, praying it all good news!!!
Community Member
15 days agoHangin in there. Ready for another round of Opdualag come Wed. Tolerating it fairly well these days. It seems to affect my calcium level for some reason. Hypercalcimia is absolutely no joke but at least we know. Hopefully meeting my new oncologist on Wednesday as well. My current one is moving to OU Cancer Center in Tulsa. π No recent imaging. We're treating, waiting and praying. ππ Feeling overall pretty well. Hope you are the same.
Community Member
15 days agoMy 9/2 Signatera went up to 0.62 from negative π’. My PET scan looked ok. I Have a appt at the Mayo Clinic this coming Weds ππ
Community Member
15 days agoπππ
Community Member
3 days agoHi David and Jill, just wanted to check in and see how you guys are doing. Iβm suppose to have my second treatment at UPMC Hillman tomorrow but just got my blood test results and my liver counts are way out of whack again, up over 220 so I am guessing it will be back to the prednisone and weekly blood tests and no treatment until they come back down. Seeing my oncologist tomorrow morning to see for sure what the plan is. Itβs just frustrating. Anyway, hope you guys are doing well and will be thinking and praying for you guys.
Community Member
3 days agoHey William, it's certainly a roller coaster isn't it. All my numbers seem to be good for now. Praying my kidney function continues comes up. Taking Opdualag still. Waiting for my next CT scan to see whether it's growing, shrinking or staying the same. π Plugging along. Working to stay healthy and praying for positive progress. ππ Thanks for checking in.
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