How do you cope when waiting for treatment to start feels endless?
WT
Community Member
3 days agoJust checking in to see how everyone doing? Still waiting on my liver counts to come down so I can start my Opdualag. I had a port out in in February and still haven’t been able to use it yet and this Prednisone is a nightmare. Haven’t had a good nights sleep since been on it. They dropped me from 80 to 60 this week and my levels are down but they still want to wait one more week and see if they come down more. Plus, going on 3 weeks since brain MRI and no results, frustrating as hell! Anyway, hope you all are hanging in there and doing well, just needed to vent.