CommunitiesIn Treatment For MelanomaHas radiation helped anyone with metastatic melanoma?

Has radiation helped anyone with metastatic melanoma?

WT

Community Member

a month ago

Has anyone had good results from radiation for metastatic melanoma? I did 3 rounds of it and few months ago and awaiting results from my latest scan. My radiologist oncologist said Melanoma usually doesn’t respond well to radiation but felt it was worth a try so was just curious if anyone else had any positive response with radiation? Hope you all are doing well with your treatments.

13 comments
Comment
CA

Community Member

a month ago

While radiation therapy for metastatic melanoma can have varying results, many patients in this community have found it helpful as part of their treatment plan, especially for targeting specific areas. Waiting for scan results can be such an anxious time, and it's wonderful that you're exploring different treatment options with your medical team while staying connected with others who understand this journey.

PT

Community Member

a month ago

I've been wondering the same thing about radiation for melanoma! It's reassuring to know I'm not the only one exploring all the options and dealing with that anxious wait for scan results. I’m

WT

Community Member

a month ago

My doc wanted to do 3 rounds of it then tells me it usually doesn’t respond to radiation which was not real assuring but I agree about the waiting for results it can be brutal plus I hate the fact I get the results before my doctors thru My Chart. We are left to guess and look up words on Dr Google.

LI

Community Member

a month ago

I had six rounds for a couple of spots on my brain and then about six months later I had targeted radiation again for about four rounds for a lump on my lower back. Both were 100% successful and due to immunotherapy, radiation, and a splenectomy I am now in complete remission for almost 2 years. I did not have any side effects from the radiation so I imagine I am one of the lucky people. It doesn’t hurt to give it a shot. I admire your willingness to reach out and get opinions, because everyone has such a different experience. Try to stay positive… I truly believe it helps. Just out of curiosity why would your doctor want to do something that he doesn’t think would be successful? Best of luck to you.

1
RO

Community Member

a month ago

5 Stereotactic radiation treatments on my melanoma tumor in frontal lobe plus immunotherapy has been effective. Shrank tumor. Continuing with immunotherapy infusions every month. Joint inflammation is side effect. Staying positive.

1
WT

Community Member

23 days ago

Thank you Lisa and Robert for the feedback. The radiation did shrink the spot on my T9 vertebrae “significantly” as the doctor put it but a new spot showed up on my rib but the doctor isn’t convinced it is the melanoma. Sending me for a Signatera blood test, it’s some kind of Tumor genomic profile blood test. If it does come back positive she said another round of radiation. Thank you guys again for the feedback.

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BF

Community Member

21 days ago

Where in your body do you have it William

DE

Community Member

20 days ago

My doctor said radiation is an option depending on how the opdualag works. Three months in, two immunotherapy treatments, awaiting treatment #3 because of elevated liver enzymes, then we evaluate. MM nodules in my left lung but thankfully nowhere else. 🙏😕

WT

Community Member

20 days ago

Hi Bobby, my original diagnosis was malignant melanoma of my right breast. Started with a mole, had surgery to remove and resection but then about a year later found a tumor in same area. Had a biopsy which tested positive for melanoma so had surgery to remove that along with lymph nodes some of which tested positive as well. It then appeared on my T9 vertebrae which is what I underwent radiation for. My latest scan showed the radiation did help shrink the spot on my T9 but a new spot showed on my rib.Been doing Opdivo for a year and a half now but may switch me to Opdualag. Hope you are doing well and thank you for your response

2
BF

Community Member

20 days ago

My doctor has me on mekinist and tafinlar. Had a brain tumor that they had two surgically removed then they did six rounds of radiation one round each on each frontal lobe where I had small spots that was 3 years ago and I've been on this medication since then and it has kept everything in check the spots on my lungs and my stomach are gone you might want to ask your doctor about these meds since it keeps coming back God bless you have a great day

BF

Community Member

20 days ago

William all of mine were also melanoma just letting you know

CM

Community Member

20 days ago

I had radiation therapy for 5 days in row 3 years ago and my tumor is now extremely small and not progressing

1
JG

Community Member

19 days ago

Bobby, you have to be Braf positive for those drugs to be effective. I’m negative.

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