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What is watchful waiting like for rare ovarian cancer?

Community Member

2 days ago

Hi ladies, I have a very rare ovarian cancer, a metastatic Brenner's tumor that has encompassed my right ureter, Diagnosed 9/25. Since Brenner's tumors are so rare, there isn't much information regarding treatments. It's treated as a low grade serous epithelial ovarian cancer - 6 carbo-taxol infusions, and typically debulking surgery in between (3/3). Unfortunately, for me surgery nor radiation is an option. I had the 6 infusions and am "done" but not NED now and likely will never be. I've seen 5 oncologist specialists (4 surgical) at Moffitt Cancer Hospital in addition to my local oncologist, and each one has given me the same answer, Watchful waiting...scans every 3 months and my cancer is stable. Has anyone else out there had a similar experience with your ovarian cancer?

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Community Member

a day ago

Watchful waiting with rare cancers can feel especially uncertain since there's less research and fewer treatment options available. The approach typically involves regular monitoring to track any changes, allowing for quick action if the cancer progresses while avoiding unnecessary treatments when the disease remains stable. Many patients in similar situations find it helpful to connect with others who understand the unique challenges of managing rare cancers - please consider sharing your experience and connecting with others here who may have walked a similar path.

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What is watchful waiting like for rare ovarian cancer?

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