Community Member
18 days agoHello, I had prostate surgery in March, Gleason score 3+4. A lymph node was also affected. I had robotic surgery. On June 5th, my first PSA test came back at 0.02. The urologist suggested a multidisciplinary oncology appointment due to possible recurrence, to determine whether hormonal treatment or radiotherapy is appropriate. I have my doubts about this. I feel good; I've overcome 95% of the incontinence, but not yet the sexual aspect. I'm scheduled for another PSA test in August. Should I wait for that test or submit to the multidisciplinary team?
Community Member
18 days agoThis is such an understandable dilemma after receiving those first post-surgery results. Many patients in this community face similar decisions about timing additional consultations versus waiting for follow-up tests. While only the medical team can provide guidance specific to the situation, connecting with other community members who have navigated similar crossroads might offer valuable perspectives on how they approached these important timing decisions.
Community Member
16 days agoIt wouldn't hurt to get the opinion of the radiation and hormone doctors. You can always say no to further treatments if your PSA is undetectable in August.
Community Member
14 days agoDear Oscar — I wish I could get access to a multidisciplinary team! In my 3 years since diagnosis and 2 years since treatment I have accumulated 23 negative side effects of EBRT and ADT. I have also accumulated 7 specialist physicians (with an 8th scheduled but not yet seen). Not one of these doctors has helped eliminate or even lessen any of my 23 afflictions. Each operates in his/her own specialty without any regard for or interest in anything the other doctors have done or suggested. And if you succeed in getting such a meeting, please do a followup post to report what was decided; maybe a suggestion or two by them could help me.
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