Is breast cancer spreading while waiting for treatment to start?
Community Member
15 days agoHi all, First post here and I wish it could be more positive. First time I'm sharing outside of my family and media k team that I've been diagnosed with breast cancer. First time I'm admitting anywhere and only because I'm realising that this may be spreading. Had a Mammogram done June 2025, told it was clear. Found 2 lumps same time 17 Nov 25. Larger was 41mm then now 45mm Saw the GP within days and a breast surgeon by the 2 Dec 2025. Same day had a scan and biopsy and got my results 8 days later on 11th. It was confirmed Grade 3 IDC Her2+ then silence till 11 days later for imaging. Invited for result on 5/1/26 and sent home no plans no nurse to speak with nothing but "we will write to arrange treatment." That was 12th Jan told it was cancelled and on 14th told I'll return 22 for Picc line and 29 for treatment. I think this cancer may be spreading. I've had no treatment at all and no idea where this thing may be spreading to. They keep telling me since imaging on 22 Dec was clear I should be ok. I don't understand they believe this themselves. It's been a shock that I'm still processing with out having to navigate the NHS system of delays. I have been told my chemo will start 29th 6 week post imaging? It's still deemed curative. But now the right breast has tingles a feeling of fullness and pin pricks on the nipple. I went in on 14th and was examined and told no problems. Today I find a small red spot on the breast. I had been quite trusting of the process but now not so sure. I have asked for an urgent scan o. The other breast after my Echo and Picc line insertion today. I'm just going to stay strong and looking to bearing this disease.
Community Member
15 days agoWaiting for treatment to begin can feel overwhelming, especially when experiencing new symptoms that heighten concerns about cancer progression. The medical team's assessment that imaging from late December showed clear results and that treatment remains curative is encouraging, though the anxiety about potential spread during this waiting period is completely understandable. Advocating for additional scans when noticing new symptoms shows important self-awareness, and many others in this community have navigated similar feelings of uncertainty during treatment delays - sharing experiences here can provide valuable support during this challenging time.
Community Member
14 days agoI would definitely get a second opinion. Something doesn’t sound right. Where are you Located? Please keep in touch and let me know if there’s anything I can say or do for u? First all being told that u have cancer is scary enough. I’m here if u want to vent or just talk. Mary❤️
Community Member
14 days agoDo you mean your insurance is national health service? Is there any way you can get to a cancer center, esp a breast center? They seem better coordinated
Community Member
14 days agoI’m confused I have Medicare and my husband’s insurance. What is urs?
Community Member
14 days agoIs it common for your oncologist to be your PCP and prescriber for all your meds? I am exhausted with the amount of apts that have left me without a PCP and what my breast surgeon or my oncologist to be my PCP.
Community Member
14 days agoHi some are u have to find out. Ask the Dr.’s office if they do that. If not go back to the patient advocate and ask on they recommend. Mary❤️
Community Member
8 days agoYou must advocate for yourself take charge of your care if you wait for oncologist you will constantly get the weight for this test wait for that, I am newly diagnosed as well, stage 3 her positive, yes it will spread without treatment have you had a pet scan insist that they give you a pet scan immediately a pet scan will definitively say if it has spread and where insist on it!
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