Just received a diagnosis? You're not alone.
177.9K membersHow do I cope after a triple negative breast cancer diagnosis?
Community Member
28 minutes agoWhere to begin, I just found out I have triple negative breast cancer and while I have received a few calls informing me of this. I am now waiting for the oncology appointment. I know I need to be patient and not panic but…I am not doing either of those things very well. How do I wait patiently, how do I not panic with so much overwhelming information on the internet. I don’t even know what to do first. Thanks for letting me share these thoughts and concerns. 💗
How can I manage fatigue from breast cancer medication?
Community Member
a month agoI'm in the uk. I don't know if you accept posts from here. I have just been diagnosed with breast cancer Ductal. 2.5cm Provisional Grade 2. Hormone receptor positive. Her2 Negative. Node Negative. I have been prescribed medication that seems to be making me very tired. I don't know if anyone would be interested in this post.
Should I get a double mastectomy for DCIS?
Community Member
a month agoI have had mammo since 2009 (33) every year. Every year they asked me to do the genetic testing and I said no because I didnt want to worry if it was positive. This year in Jan did my yearly mammo and was clean as always. Did a pap in May and the gynecologist recommend that I get a yearly mammo and a yearly mri just to be safe... I said ok, Did an MRI in June. Found a spot, turns out to be dcis positivefor er and Pr. 16 years of yearly mammos and 1 mri pulled the rug from under me. I know the course is lumpectomy but I want double masectomy. Ended up doing that genetic testing anyways and it was negative. I juat want thia to be over with so I can live my life.
How do I afford cancer care with high insurance costs?
Community Member
a month agoI was recently diagnosed in May 2026 with IDC, HR+ / ER+ / HER2- . I live in NY State. I am currently covered under my husband's employer insurance, but the premium is extremely high, and with my mental health and substance use disorder copays, I am paying around $1,400/month out of pocket. I have not been able to work for the last few years due to mental health, addiction recovery, perimenopause, and now breast cancer. I am a nurse of 24+ years - I am used to being the helper, not asking for help, and this has been really hard. I did submit a financial aid application through the hospital/cancer center, but I received notices that I need my 2025 tax information and I am unable to log into my TurboTax and IRS accounts to get it. I'm getting very discouraged trying to manage it on my own.
What's recovery like after lumpectomy for Stage 0 breast cancer?
Community Member
17 days agoI was recently diagnosed with Stage 0 breast cancer and my care team is discussing breast-conserving surgery (lumpectomy) as one of my treatment options. They explained that this surgery removes the cancerous tissue while keeping most of the healthy breast, and that it's often followed by radiation therapy to help reduce the risk of cancer returning in the breast. I'm trying to learn more about what this experience might be like and would love to connect with others who have been through something similar. • If you had breast-conserving surgery for Stage 0 breast cancer, what was your recovery experience like? • What advice would you give to someone considering this treatment option? I'd really appreciate hearing about your experiences and any tips that helped you along the way.
How do I cope with waiting for biopsy results?
Community Member
a month agoHello! I just met with my surgeon today. I have invasive lobular in my left breast. The mass is 4.5 cm. So she will remove the breast and have reconstruction. There’s a small spot in my right breast that they can’t biopsy til 8/11. Meanwhile, I’ll be having lab work and body scans. The waiting is awful! I want it gone yesterday!! 😩😝 I’m semi ok with the surgical plan. My fear if it’s spread and I need chemo. That scares me like crazy. Thanks for letting me vent!
What can I expect from PET/CT scans for breast cancer?
Community Member
2 months agoHi all! I was recently diagnosed with Invasive lobular breast cancer. I turn 56 in a few days. I am waiting on the PET/CAT scans to be done. I don’t know what to expect and am a little scared.
What should I expect with triple positive breast cancer treatment at 50?
Community Member
a month agoHello everyone! I am 50 years old, not yet menopausal, and was just diagnosed with IDC and DCIS triple positive. I meet with my oncologist on Friday for the first time. I also have an MRI scheduled by my surgeon to determine lymph node involvement and what my surgical options are. My mom had a partial mastectomy back in the mid-90’s (we don’t have the gene, though) for DCIS and she said the lymph node removal was the worst part. Since she went through radiation therapy and things were so different back then anyway, I’m hoping to learn as much as I can, figuring that if I can look at it more clinically, it will be less scary or intimidating or whatever.
What should I expect with DCIS recurrence and double mastectomy?
Community Member
2 months agoHad a biopsy that showed 2.1mm triple positive grade 2 cancer and 80% DCIS. The sample was only 2 centimeters, and the calcifications are 4 centimeters. They are thinking that most of it is DCIS but not sure. There was no mass visible on the mammogram and none mentioned on the MRI. Only the calcifications. Lymph nodes appeared normal on MRI as well, which is a relief. This is a recurrence. I previously had DCIS 4 years ago and treated it with lumpectomy + radiation + tamoxifen. I believe I am tamoxifen resistant, which is really not good at all, but I know the primary treatment is surgery, so I hope that removes all traces of my breast cancer. I am anxious to get my DMX yesterday. I know there are no guarantees, but statistically, so long as they don't find more invasive, my odds are 95% or more that a DMX will cure me. I will still take whatever adjuvant therapies they believe I need. I have to meet with a MDC since it is a recurrence, but I believe because mammogram looks like DCIS and the IDC removed was only 2.1mm that I will for sure be recommended surgery first. Don't know, though. It's scary having to wait and all the unknowns. If anyone has any thoughts, feel free to comment.
How do you cope when you feel scared and alone after breast cancer diagnosis?
Community Member
2 months agoI was diagnosed with breast cancer on June 3rd, I haven't started treatments yet but have had a biopsy, mri, ctscan, and next week, a bone scan. Im HERS2+ (HR+). I have 2 large masses and some small masses in my right breast with it mastasized to my lymph nodes under my arm, and I just found that I have a few small nodules in my right lung which may or may not be cancerous. I am petrified to what is going to happen. It's funny how horrifying this is to me considering I was born with Congenital Hydrocephalus and have had close to 60 brain surgeries to revise and replace 2 shunts throughout my 53 years and another brain surgery doesn't faze me. I don't have much support, at least not the kind I need most of time, my loved ones are there for me and understanding, but it doesn't seem to register with them how completely petrified I am, and sometimes a hug or embrace to let me cry and scream is all I want.
New to the community?
Create an account to connect with others navigating cancer.
© 2026 Outcomes4Me Inc. All rights reserved.