Just Diagnosed With Breast Cancer

Will my breast cancer journey be lonely? How to prepare for first oncology appointment?

Hello Everyone, I was diagnosed on Jan 13th with IDC Er/Pr + Her2 - tumor is 1.7cm I will be seeing a doctor on Feb. 9th. I have been trying my hardest to educate myself so when I see my doctor I will not be looking at her like deers in headlights! I’m struggling with my family and friends. Why do they ask you questions and mid conversation it looks like they checked out and I feel like I’m talking to myself. I have gotten to the point where I just answer “I’m fine, just waiting for my doctors appointment “ Is this going to be a lonely journey?? I don’t know how to prepare for my first appointment. I’ve had some sleepless nights just thinking about what’s my journey going to look like. Can anyone share what I should be preparing myself for? Thank you!

How do you cope with feeling like a zombie after breast cancer diagnosis?

Hi first time here I have 3 tumors 2 of them are dcis confined to duct and 1 dcis that has extended into tissue. All 3 are hr positive with her2 low at a 1. I see a surgeon on Thursday and an oncologist next Thursday. I had annual mammogram in December I got report online in portal and showed it to my hematologist since I had an appointment already never heard from my primary until they got request from my hematologist for testing. Took 2 weeks to get referral for biopsy. It was requested as stat. With me calling to get scheduled. Anyway I'm not in mood to do anything I just lay around on phone or watch tv. I have a strong family history of breast cancer so I've decided that if they will do it I want a double mastectomy. How do you all deal with getting spirits lifted so I don't feel like a zombie all the time. I do try to keep my mind active listening to audio books I just started knitting so I do that sometimes. I play some video games but nothing stressful relaxing games. I'm just beginning this journey any advice is welcome

How long does soreness last after breast cancer surgery and radiation?

Hi, everyone. I’ve had this app for awhile just haven’t written anything. I was operated on November 28 , 2024. I just had a small lump. They also removed lymph nodes but it had not spread. I did radiation for about a month. Then I started the 5 year pill. I’m supposed to get another mammogram this week but been sick so I might change it. I’ve had one mammogram since surgery, only side that was operated on. This time will be both sides. It’s been over a year, still sore hope goes away soon. Any one wants to talk I also have facebook under Marzullo in chambersburg pa. Take care everyone.. I hope everyone is doing well.

What's it like having ESR1 mutation metastatic breast cancer treatment?

I'm a premenopausal woman with hormone-positive metastatic breast cancer that has an ESR1 mutation. My oncologist discussed second-line hormone therapy options with me, including treatments that induce menopause combined with hormone therapies. Some options like Orserdu (elacestrant) and Inluriyo (imlunestrant) specifically target the ESR1 mutation. These are designed for after first-line hormone therapy stops working. I'd love to connect with others who have a similar diagnosis and hear about your experiences with second-line treatments. • What has your journey with second-line hormone therapy been like? • If you have an ESR1 mutation, what insights or tips do you have about navigating treatment decisions?

What to expect during radiation therapy after breast lumpectomy?

I recently had a lumpectomy and my team has recommended radiation therapy as the next step. From what I understand, this treatment uses high-energy beams to target any remaining cancer cells in the breast area that surgery may not have removed, which helps reduce the chance of cancer returning in that location. I'm feeling a bit nervous about what to expect and would love to hear from others who've been through radiation after breast-conserving surgery. • What was your daily experience like during radiation treatments? • What tips or advice do you wish someone had shared with you before starting? Thank you for sharing your experiences - it really helps to hear from people who understand what this journey is like.

How do you cope with waiting for treatment decisions after breast cancer diagnosis?

Newly diagnosed with invasive lobular brest cancer. It was discovered with my annual mammogram in October 2025. Had 2 biopsies MRI and numerous mammograms. Lumpectomy done Jan 8, 2026. Saw medical oncologist last week. Will be seeing radiologist oncology next week. Tumor sent for OncotypeDX to determine if I need chemo. Long process that does make you anxious for treatment. My cancer is Stage 2 HR+HERneg. Lymph nodes are clear. You want treatment right away and waiting is tough.

Will high blood sugar delay my mastectomy surgery next week?

Help! I need advice on my situation, my double mastectomy is scheduled for next Tuesday but my blood sugar levels are high- so I’m stage 1 but in 3 weeks I may be Stage 4. Please advise

Is breast cancer spreading while waiting for treatment to start?

Hi all, First post here and I wish it could be more positive. First time I'm sharing outside of my family and media k team that I've been diagnosed with breast cancer. First time I'm admitting anywhere and only because I'm realising that this may be spreading. Had a Mammogram done June 2025, told it was clear. Found 2 lumps same time 17 Nov 25. Larger was 41mm then now 45mm Saw the GP within days and a breast surgeon by the 2 Dec 2025. Same day had a scan and biopsy and got my results 8 days later on 11th. It was confirmed Grade 3 IDC Her2+ then silence till 11 days later for imaging. Invited for result on 5/1/26 and sent home no plans no nurse to speak with nothing but "we will write to arrange treatment." That was 12th Jan told it was cancelled and on 14th told I'll return 22 for Picc line and 29 for treatment. I think this cancer may be spreading. I've had no treatment at all and no idea where this thing may be spreading to. They keep telling me since imaging on 22 Dec was clear I should be ok. I don't understand they believe this themselves. It's been a shock that I'm still processing with out having to navigate the NHS system of delays. I have been told my chemo will start 29th 6 week post imaging? It's still deemed curative. But now the right breast has tingles a feeling of fullness and pin pricks on the nipple. I went in on 14th and was examined and told no problems. Today I find a small red spot on the breast. I had been quite trusting of the process but now not so sure. I have asked for an urgent scan o. The other breast after my Echo and Picc line insertion today. I'm just going to stay strong and looking to bearing this disease.

How to cope with DCIS diagnosis when family is grieving recent cancer loss?

I was just diagnosed with DCIS this week. I see my surgeon next week to go over the results ( I gave her permission to test my samples further so I’m not sure I’ll find out the level of the cancer next week or after the lumpectomy. I’m trying to remind my to be grateful that it’s encapsulated. But it’s still THAT word. My husband and his family are behind me but they are still going through the grief of losing dad just 6 months ago from a rare cancer- 10 days sick and he was gone .

What should I expect when cancer spreads after hysterectomy?

Sorry for the length but it has been quite a ride for me. I am a 66 year old female. 2 1/2 years ago I was diagnosed with EIN after an abnormal pap and biopsy. I was scheduled for a hysterectomy and oophrectomy. This was completed and the oncologist Dr Hummell Corewell health did the surgery. He did have a difficult time as there where multiple adhesions to the bladder and rear of my pelvis. I was healing fine and the results pathology came back. I had EIN but I also had a sarcomo of the uterus cervix fallopian tubes. This was totally unexpected. The tumors were labeled as UTROSCT and the margins were ppositive I had radiation therapy and entered surveillance. I had about 3-4 ct’s during this time, all basically normal. About 9 months ago I started having an increase in back pain. My primary care provider at the VA NP Alvaroda ordered an MRI of my whole spine. I had a history of back pain and I believed that it was just getting worse. It came back concerning for malignancy on multiple vertebra and pelvis.After a while getting all the paperwork and insurance I had a another CT also normal, and A biopsy of one of the most affected vertebrae T5. It came back positive for cancer, the pathology was believed to be from the UTROSCT from before. I was started on Letrozole and a bone strengthening infusions. I thought that was it. About a month after that I got a call from Dr Hummel, He had submitted the biopsy for further testing, Caris, I think. That pathologist said that it was not the UTROSCT but it was most likely a lobular breast cancer and I needed a breast MRI. This was just after I had had a clear mammogram. I had the MRI and it did indeed show several suspicious areas in my left breast. One 9 cm 2.4 cm around. And another 6 cm lesion. It also showed lymph nodes enlarged, sternum and ribs involvement and enlarged lymph nodes in my abdomen and involvement in my heart. I am scheduled for a breast biopsy and just had a pelvic, abdominal and chest CT which was again fairly normal, They saw small things but it generally looked benign. I am so many things, confused scared wondering what is the extent of my disease that they keep missing?