My Experience with DCIS: Seeking Alternatives to Radiation

Same diagnosis. I had a lumpectomy two weeks ago, it has gone better than I expected. I do plan on having radiation, to lessen the chance of recurrence. In my case, the plan is for 5 radiation treatments, one every other day. After that, I will go on meds. If there are any questions I can answer for you, I am happy to.

Me too Barbara. Same. Erring on the side of caution so 5 radiation treatments.

I have my double mastectomy June 4th and reconstruct surgery scared to death

Hi Susan, I have the same diagnosis and will have a lumpectomy in 2 weeks then radiation. Do you mind sharing what prompted you to forego radiation. I’m 50/50 about. What is your course of treatment after that.

Hi Susan. Yes I've just finished my 4 weeks and felt fine through it all except the redness of the breast kinda sire but been putting creams that they have u use on it 2 times a day . U don't even feel a thing and it only lasts for maybe 4 min and ur out !!

Why decided just a lumpectomy? Im scared of it coming back

Hi Susan, ladies, I just had my lumpectomy 5/15, due to IDC. Meeting with my Surgeon to discuss results of the biopsy from the mass removed then with my Oncologist shortly after.

Hi Susan. Mine was non invasive stage 0 .had lump ectomy done .My radiation treatments were for 4vweeks which I finished up last Tues. The treatment beams only lasted less than 5 min and ur done for the day and dint feel anything . But after 2 and a half weeks In I did notice my breast getting toasty and I got blotches on my breast too .The cream they give u to use helps . But all in all I'm feeling good .

I think this type of cancer gets over treated. Stage 0, grade 1. I’m meeting with a radiologist on Monday to discuss. I may change my mind if it’s only 5 treatments. Or skip radiation and take the hormones. Just not sure yet.

I also have ductal insitu. Stage 2. Radiation 15 treatments and hormone blockers was suggested. I am not doing either and doing a double mastectomy. They say a small chance of recurrence with radiation, but 12 percent recurrence seemed high to me. I think I just don’t trust my body. I had bladder cancer 17 years ago so my body makes cancer. I feel that mastectomy for me is the best choice, but scared to death.

Many people in this community have faced similar treatment decisions and understand the importance of exploring all options with your medical team. The upcoming appointments with your surgeon will be valuable for discussing your concerns about radiation and learning about what alternatives might be appropriate for your specific situation. This community has wonderful members who have navigated various treatment paths, so connecting with others who have been through similar experiences can provide helpful perspectives as you work with your doctors to determine the best approach for you.