CommunitiesJust Diagnosed With Breast CancerMy Breast Cancer Diagnosis: More Advanced Than Expected

My Breast Cancer Diagnosis: More Advanced Than Expected

SC

Community Member

a year ago

I was diagnosed today! Stage 3 grade 3 idc. 3 lymph nodes affected, MRI showed that it wasn’t just 4 different tumors but that it has moved in my entire breast. I have a lymph node near my collarbone that has to be biopsied this week, and appointment Friday to get a pet scan to see if it has attached to others parts of my body. My nerves are shot and I can’t stop crying. I was told Nov 15 th that I had cancer just didn’t know a kind yet, and really put it in my head it was gonna be like a stage 1. This was way more than I imagined. After pet scan I’m not sure what to expect. Anyone else deal with this?

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accepted answer

Accepted Answer

What a shock this must be when the reality is so different from what you were preparing for. Many in this community have experienced that overwhelming feeling when staging results reveal a more complex situation than initially expected. The waiting period between scans and results can feel endless, but remember that having a complete picture through the PET scan will help your medical team create the most effective treatment plan for your specific situation. This community understands the fear and uncertainty you're facing right now, and you'll find others here who have walked similar paths and can offer support during this difficult time.

3+ patients found this helpful

PW

Community Member

6 months ago

I found out Oct 22 I had breast cancer. I understand and empathize with your emotions. One night I was awake and started crying, I remember praying “I’m scared” I felt words of “feel your emotions and don’t deny how you are feeling.” I began to feel calm enough to go to sleep. So for me, recognizing and honoring how I was truly feeling was the answer for me. My heart goes out to you at this time.

CN

Community Member

6 months ago

This is not what I planned on doing in my old age. I never wanted going to the doctor as a hobby, every time I see a doctor I end up in more pain then they want to run the bill up. How expensive is this cancer? That is going to be a good reason not to do anything. Cost! No long term care funds. Mom had lung cancer then went into her eye, became blind and broke. She was in so much pain not worth living if this happens. I only went when I was pregnant and that was it. I need total spine surgery and refused (cost) and now breast cancer. How long to live if you just have a mastectomy? I can’t live with this vomiting prospect or feeling miserable as everyone writes about. What is to live for, (5 years of pill popping?) I don’t associate with kids and no grandkids or husband and no really funds for retirement (late 60’s) Why extend if it is this bad and nothing to look forward except vomiting? Sorry so negative.

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NH

Community Member

6 months ago

Please don’t be so paralyzed by fear that you stop living. I hope your PET gives the oncologists enough details to do the most aggressive treatments that you can tolerate. Cancer’s not always a death sentence, and I would encourage you to do something proactive for your own mental health. That could be joining a support group, an exercise or nutrition class, even a book or hobby group. Ask your provider for proper medication to help with anxiety or depression, no shame in that!

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JG

Community Member

6 months ago

I hear how scared you are and depressed. Is there a cancer support center where you live? They will help you make decisions and connect you with financial help. I know the future looks dismal to you but getting more information could help you make better decisions about what is possible. Also, your Dr could give you medicine for your depression and anxiety. Do you have a pastor to talk to? Sending prayers and loving thoughts to you. ❤️🙏🏻🙏🏻🙏🏻

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IR

Community Member

6 months ago

I was diagnosed in July 24. Lumpectomy in August. IBC stage 2b Grade 3, 1 node involved. My PET scan was clear. I had 4 rounds of chemo and am currently completing 36 rounds of radiation. I too thought this would be less than it is. I am almost at the end of treatment and am cautiously optimistic. I pray that your journey goes so smoothly and that your support group is strong💕

JS

Community Member

6 months ago

Irene so good you are coming to the end of the treatment…I’m just beginning, I should have the oncotype test results on Tuesday…to see what is best to do.

CA

Community Member

2 months ago

What a shock this must be when the reality is so different from what you were preparing for. Many in this community have experienced that overwhelming feeling when staging results reveal a more complex situation than initially expected. The waiting period between scans and results can feel endless, but remember that having a complete picture through the PET scan will help your medical team create the most effective treatment plan for your specific situation. This community understands the fear and uncertainty you're facing right now, and you'll find others here who have walked similar paths and can offer support during this difficult time.

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