Newly Diagnosed Stage 4: Scared and Seeking Support

🙏🏾🙏🏾🙏🏾. Please stay strong. You can fight this

Stage 4 cancer is often seen now as a chronic disease. There may not be a cure but the cancer is manageable for many years. Please take someone with you to the oncologist for a second set of ears and to take notes. Stay strong and be positive.

🙏 wishing you all the best

@Georgia B I did actually I took 2 sets of extra ears with me just to make sure nothing gets missed!

Sending prayers, you got this

So yeah lots been going on- Dr said it’s not just stage 4, but stage 4 metastatic ( lungs, sternum, spine, pelvis, femur , both breast) all that can be done is to put me on hormone blockers (early menopause) and hope to slow the progression.. and here I didn’t think could get any worse! I’m keeping my faith as best I can- hope to start something soon to ease pain

In my prayers. Send lots of love and hugs your way! Please keep us posted. 🙏❤️🌹

Good luck.

Stay strong and fight. My prayers are with you 🩷🩷

🙏🏽🙏🏽🙏🏽

Same here, newly diagnosed stage 4 Mets to back, spine, ribs, and chest. Oncologist immediately told me many many women are living long with this diagnosis (this is indeed treated at a chronic disease). Just started on meds (Letrozole and Kisqali), possible bone strengthening med in future. *This is such a great group of women who connect ,uplift, share, and cheer us on. It’s ok to be scared, but fight scared!!!! Read to educate yourself, exercise, and keep your mind strong. You got this 👊🏼

@Pamela J - how much trouble did you go through getting the kisqali? I’m going through so many hoops

@Alexandria C- Yes! I have a great oncologist who assigned a nurse navigator to help me. My hospital mentioned giving me samples to try while they worked with my insurance. Finally, they got approved after about 3 weeks. (Kisqali is insanely expensive 😳!) *Also, ask your oncologist can she help you with trial samples while you are navigating through all of this??🙏

@Pamela J - I will definitely ask!! I start first injections today Friday Sept 13th, of the lupron and xgeva. Very nervous found out by a few others that they are going pretty aggressive with the hormone blockers! Most go through some form of chemo or radiation or surgery mine said not an option l! I’m so scared on how I’m going to react to medication as I normally have bad reactions to medication bcuz they don’t work!! Every possible side effect I normally get with medications so not looking forward to it! But I have my daughters ( 10,13,17) as my push to get better and not let the thought of 10 year deadline get to me

I pray all will be ok

It's completely natural to feel overwhelmed when facing a new diagnosis, especially with so many questions swirling around. Meeting with your oncologist tomorrow will help provide clarity about your specific situation and treatment options, which can help reduce some of the uncertainty you're experiencing right now. The community here understands the fear that comes with a diagnosis like this, and many members have found strength in connecting with others who truly get what this journey feels like.