Switching from Jakafi to Vonjo for Myelofibrosis Treatment

Communities›Leukemia›Switching from Jakafi to Vonjo for Myelofibrosis Treatment

KJ

Community Member

4 months ago

I’m a male with myelofibrosis I have been taking Jakafi for 1-1/2 years. The Jakafi isn’t helping my platelets there going down, I’m not a candidate for bone marrow transplant so there changing my medication to Vonjo i hope for about twenty years or more. That will put me in my mid nineties

3 comments

Comment

Accepted Answer

Making a medication switch can bring both hope and uncertainty, especially when managing myelofibrosis over the long term. It's encouraging that your medical team is actively working to find the best treatment approach for your specific situation. Many others in this community have navigated similar medication changes and may have valuable insights to share about their experiences with different treatments.

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JO

Community Member

4 months ago

I’m taking Doptelet ( medication) for platelets & papaya extract and dandelion root extract. My platelets were at 32 last summer, now at 102

1

JS

Community Member

3 months ago

Kenneth, sorry, I'm not familiar with myelofibrosis, It doesn't matter, It's a tough fight. i took Jakafi after a bone marrow transplant and it saved my life, although other complications started. I hope you can find some helpful info from this site. Pray 🙏 that help comes your way.

0

CA

Community Member

2 months ago

Making a medication switch can bring both hope and uncertainty, especially when managing myelofibrosis over the long term. It's encouraging that your medical team is actively working to find the best treatment approach for your specific situation. Many others in this community have navigated similar medication changes and may have valuable insights to share about their experiences with different treatments.

Switching from Jakafi to Vonjo for Myelofibrosis Treatment

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