Community Member
a month agoI have CMML and started chemo. I had 2 have 2 transfusions bc platelets dropped to 10😳. After 2 transfusions, they’re at 32. They had problems finding my veins and my dr suggested a port. It sounds very frightening. Does anyone else have a port? Was it painful to put in? Does it help?
Community Member
a month agoMany community members have shared that while getting a port can feel intimidating at first, it often becomes a real game-changer for making treatments much easier and more comfortable. The procedure is typically done with sedation to keep discomfort minimal, and most people find that having reliable access for treatments and blood draws makes such a positive difference in their care experience.
Community Member
a month agoI have a port. In the long run, it was a good thing for me. It did take a while to heal and was painful for a while. I have APML and go through 20 day cycles of chemo, so it was the best choice for me.
Community Member
a month agoThanks Renee! I have a 28 day cycle
Community Member
a month agoJoanie, my platelets are down after chemo. They are at 15, had platelets yesterday. Go for labs on Tuesday to see if platelets came up. Most likely I will have platelets on Wednesday.
Community Member
a month agoKenneth, my platelets dropped to 18, 2 days after infusion when they went up to 32. Dr will do another blood draw tomorrow and I’m hoping and🙏🏼that they don’t drop more, otherwise another transfusion
Community Member
a month agoJoanie, chemo does take toll on platelets and white cells. It’s feels good to be on chemo vacation, but have to go for platelets. I feel like Sloan is my second home.
Community Member
a month agoI know! I’ve had 4 blood draws this past week
Community Member
a month agoJoanie, when I go for chemo, I leave the needle in my arm for 5days, so I don’t have to be a pin cushion. 🤣
Community Member
a month agoGood idea
Community Member
a month agoJoanie, I've been in hospital now almost 6 weeks. On my 3rd port. Much easier than getting stuck all the time. It doesn't hurt, itmakes it easier for transfusion platelet and fluids. Since I went into blastt AML my numbers constantly shift up and down. And have to get numerous transfusions with the chemo cycles Chris
Community Member
a month agoChris, How come u have had to have 3 ports? Didn’t the others hold up? How long have you had AML & how long before it went into AML.
Community Member
a month agoJoanie, I have no ports.
Community Member
25 days agoJoanie, 1st port taken out from an infection, 2nd was I was getting released from hospital. 3rd was put back in when readmitted 2 days later. When I was first admitted to hospital 6 weeks ago from a fall at home they took bloodwork and found my blood numbers had all changed and that I went from cmml to blast aml. We always knew it would eventually happen, but surprised it came this early.
Community Member
12 days agoHi I'm Judy I have AML I was diagnosed in February 2024 after 4 hospitals and they finally figured out what I had . I had absolutely no veins left they put a pick line in they hurt so bad putting it in and it failed so I had a port port in the best thing I could have done.. I have lost count on how many blood transfusion I have had pretty much 2 or 3 units every other week
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