Is my CLL doctor being too dismissive about monitoring after diagnosis?

It can’t hurt to get another opinion. My dr does bloodwork once a month

Agree with Joanie, although I have CMML not CLL. I’d definitely get a 2nd opinion and push for monthly CBCs if your insurance is decent.

Tom, how long have u had CMML. I have it too. What kind of treatments do you get?

Hi, Wayne here, diag with Cmml-2, Oct. 2024. Directly into chemo, Vizada treatments, 7 week days in a row, then a three week break, looking into Shaklee, nutritional supplements, many advances over several years

Dr. Wants me to do 24 cycles of this, seeking alternatives for this, chemo rd. 9,10, and 11 not so kind

Kristina, Definitely, seeking another opinion

Thank you all for your advice. I will definitely get another opinion and I wish everyone in treatment well.

Joanie I was diagnosed Dec 23. No treatment yet as my CBCs have been stable except for platelets (mid 20s - 30s)

Tom, that’s amazing! I was diagnosed in Dec 24 and I will start Decitabine sometime in next 2 weeks. I had another bone biopsy and my blasts are at 10%, platelets at 37 and hemoglobin 9.5

It's completely understandable to feel concerned about the monitoring schedule, especially when different sources suggest varying approaches. Many patients find that monitoring frequency can depend on specific factors like staging, lab values, and individual risk factors that doctors assess during diagnosis. Getting a second opinion is always a reasonable option if something doesn't feel right - it can either provide reassurance about the current plan or offer a different perspective that might better address those concerns.

Diagnosed with CLL 3 years ago. Bloodwork and followup every 6 months. Counts progressing steadily upwards, but still no major symptoms. Sounds like no benefit of treatment until symptoms develop.