Has anyone else been diagnosed with CLL and struggled with infections?

CLL has the best survival rates for 5 year survival. I have CMML with lowest survival. Just enjoying life day by day. 🙏🏼 for at least 3 years

Hi Tracy l was diagnosed last year

I was diagnosed with CLL in May of this year and the hematologist/oncologist acted like it was no big deal and told me I probably wouldn’t need treatment for 10 to 15 years. And that he didn’t need to see me again for a year. Didn’t say he needed anymore blood work or anything. I’m 54 and thinking about getting a second opinion because he did do a ct scan and told me I had some questionable lymph nodes but still acted like it was nothing to worry about

Hi Tracy. I was diagnosed last year with CLL. It has been a year. My white count and lycocytes are elevated but steady over the past year. I am 67 and feel great. My hemotologist said it could be this way for years. So keep your head up and live life while you can. I am traveling a few times a year to places i want to see. Exercising daily swimming and hiking.

This diagnosis has inspired me to travel more and not wait for joy. I get bloodwork every month to monitor my antibody levels and see the oncologist every three months. Just monitoring for now. Oh, and I just got married! No reason to put off good things!

Thanks for all your responses. John, I appreciate your positive push!

Managing respiratory infections with CLL can definitely be challenging, and it sounds like finding IgG infusions that helped was a real positive step forward. Many community members here have shared similar experiences with how CLL affects their immune system and recovery times, so connecting with others who understand this journey could provide valuable insights and support.

I was diagnosed with CLL in February 2009. I started my 1st treatment in November 2023. I was told that CLL is the best cancer to have if you have to have cancer.