Community Member
a month agoI'm currently on several medications for my heart and breathing - Lisinopril and Cardizem (diltiazem) for blood pressure and heart support, plus spironolactone and bumetanide to help with fluid management. I also take Symbicort (budesonide plus formoterol), montelukast, and Flonase Allergy Relief (fluticasone) for asthma and allergies during my treatment. I've been experiencing severe leg swelling, a 20-pound weight gain, and difficulty bending my legs, which I plan to discuss with my oncology team. I'd love to connect with others who have managed similar heart and breathing medications during their treatment journey. • How did you handle fluid management challenges while on similar medications? • What helped you stay comfortable with breathing medications during treatment?
Community Member
a month agoManaging multiple medications during cancer treatment can be especially challenging, and the symptoms you're describing sound concerning and definitely worth discussing with your oncology team as you planned. Many patients in the liver cancer community face similar medication management challenges, particularly with fluid retention and breathing support, so connecting with others who have navigated these issues could provide valuable insights and support during your treatment journey.
Community Member
a month agoI got what they call, "the Lisinopril cough." An allergy specialist finally diagnosed it.
Community Member
15 days agoHere is an update of my current status. It has been 9 days since my second treatment. It took them 3 hours to get my pick line working. What was supposed to be a 45 minute treatment too over 5 hours. My energy level is lower than after my first treatment. I am weaker, shakey, deficulty walking and standing. I have 3+ bowel movements daily vs my usual 1 per day. My energy level is down and am not able to do anything but sit for all but an hour or so a day. Foods (bread, noodles, some hamburger, etc) are starting to add up as having a metallic after taste. Blood pressure is low for me (105/75) with a pulse around 100. My temperature continues to run low 95.5. My weight is holding steady after losing 20 lbs after my first treatment. My joint pain has increased making every movement painful, slow and difficult. I think I strained a muscle in my lower left abdomen/pelvic area from trying to sit up or get up without assistance. My leg edema is slowly going down in the morning and not swelling as bad by the end of the day. I have developed "weeping" in my ankle feet area. This has led to soaked socks, shoes and lower pant legs. I have not had any pain in the liver area since my ER visit (12/17/25), when I was diagnosed. I continue to be cold throughout the day. I developed a rash after my first treatment on my chest and shoulder areas that mostly faded but returned after the second treatment. The good thing is that it doesn't itch or bother me aside from how it looks. I have communicated all my symtems to my oncology team and they say everything is fine. They say all my blood work and urine tests all look positive. The answers I look forward to are : -is the treatment working -will all the symptoms I have lessen or increase as treatments continue -how many of my symptoms are cancer related or treatment related
Community Member
5 days agoI am currently in the hospital for a bowel blockage. I haven't had anything to each or drink for 4 days. I thought I had a pulled stomach muscle. My 3rd treatment was scheduled for Tuesday. I am sure that it will be canceled. I really wished that I had gotten the 3rd treatment and to a point that may have told me if the treatment was effective. I guess now I must get through this blockage and see how quickly I recover. I hope that I can start the treatments again.
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