CommunitiesLiver Cancer (Hepatocellular Carcinoma)What is life expectancy after HCC diagnosis with and without treatment?

What is life expectancy after HCC diagnosis with and without treatment?

DP

Community Member

4 months ago

I was diagnosed with HCC one month ago and was given 4 to 6 months without treatment or 1 to 3 years to live with treatment which was supposed be Immunotherapy since then my treatment has been changed to tablets this is due to blood clotting and my heart condition. I never started my immunotherapy and due to start my tablets this week. I have felt fine up to very recently and used to walk 10-12k steps per day but now I can only manage 2-3k steps without resting, my legs are a little swollen but not too bad, is this lack in energy normal for my stage of liver cancer?

11 comments
Comment
CA

Community Member

4 months ago

Life expectancy with HCC varies greatly between individuals and depends on many factors including cancer stage, overall health, and how well someone responds to treatment. The changes in energy levels and physical symptoms described are commonly experienced by people managing liver cancer, as the body works harder to cope with both the disease and treatment effects. Speaking with the medical team about these recent changes would be helpful, as they can provide personalized guidance and potentially suggest ways to manage fatigue and other symptoms during this treatment transition.

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MS

Community Member

4 months ago

🙏🙏hang in there.. I was recently diagnosed with liver cancer and it hasn't been a fun journey... But with prayers and a good support system I'm going to try to kick some ass.. and you will be included in my prayers

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DP

Community Member

4 months ago

Thank you Mike S for your support and encouragement

DP

Community Member

3 months ago

As an update I was hospitalized two weeks ago as I couldn’t breathe, they ended up draining 9/10’s of a liter of fluid from my right lung, they did not drain my abdomen as there was less of a build up of fluid and as my liver has expanded they did not wish to take a chance with the drainage needle being so close to my liver. I can breath much better and now walk much longer with better energy. I was told that my Liver Cancer was the cause of the fluid build up. I started my treatment at the same time 3x4 mg of Lenvima capsules per day but under my oncologist’s instructions i have stopped taking them for a couple of days due to heavy itching of the skin. When the inching subsides I can go back to the Lenvima with two capsules per day rather than three capsules per day. I hope this itching stops and taking two capsules a day works. Time will tell.

JA

Community Member

3 months ago

I was diagnosed with liver cancer and I had a procedure of radiation a couple of years ago, but I found out last week that it was back

DP

Community Member

2 months ago

James Sorry to read that your cancer has returned, all the best wishes it can be controlled and treated to make you better again.

CK

Community Member

2 months ago

I was just in the last few days diagnosed with liver cancer that has metastasized. Waiting on appointment at Mayo with a liver oncologist after waiting for two different biopsies to get the correct results. I am a liver transplant patient at Mayo since 2017. Continuing with the anti rejection drugs I have been prescribed. I have ad no issues with the liver since the transplant. Diagnoses of liver cancer is a major surprise for us. I

DP

Community Member

2 months ago

Hi Claudia Hope you get your appointment very soon and you get the results you are hoping for wishing you the very best. Hang in there 🤞😊

DP

Community Member

a month ago

Up date I have finally completed a clear month of uninterrupted Lenvima capsules although only taking two capsules of 4mg each rather than three but my numbers have dropped from 10,150 to 4,800 😁 so the Lenvima capsules are working I’m starting to build up to prescribed dosage and the oncologist is scheduling me a MRI prior to my next appointment on September 3rd so wish me well. 😁👍🏻

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NM

Community Member

a month ago

My husband was diagnosed with stage 4 liver cancer on July 1 our 38th wedding anniversary, he has a 15.5x 7.7cm tumor and 6 smaller ones ranging from 7.5cm to 4cm the large tumor is on the left and central portal vains. He just had an upper GI and had variceal band ligation, resulting in deflation of varices.” He is supposed to start chemotherapy/immunotherapy as (palliative) he is now second guessing his decision if he wants to go through hell of chemo when the outcome wont change, he wants to enjoy what time he has but if there is a chance for more time as long as it is quality then he wants it. I will not tell him what to do this is his choice he is having enough taken away from him he deserves this decision to be his. I am scared to death.

DP

Community Member

a month ago

Hello Nancy So sorry to read your post about your husbands condition. In a way I am in a similar position to your husband but the difference is my treatment of immunology was decided by the Oncologist as it may cause blood clotting which my heart may not survive so I was prescribed a medication named Lenvima which hopefully will extend my life a couple of years without the pain and problems of chemo/immunology. I’m now four months from my diagnosis my tumor was 19 c/m’s and a couple of smaller ones. I feel no ill effects apart from a lack of my energy. If I was your husband I would ask to speak with his Oncologist with regard to the difference of chemo versus Lenvima type medications. The quality of life means more to me than extending it My wife and family also agree with my decision. Best wishes to both you and your husband.

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