Community Member
a month agoI have metastatic hormone-positive, HER2-negative breast cancer and I'm currently on Kisqali (ribociclib) with hormone therapy. I've been learning about supportive care options that focus on managing symptoms and improving quality of life alongside my treatments. It sounds like these services can help with comfort and daily living throughout the treatment journey. I'd love to hear from others with similar diagnoses about your experiences with supportive care. • What types of supportive care have been most helpful for you during treatment? • What do you wish you had known earlier about supportive care options available to you?
Community Member
a month agoSupportive care can make a meaningful difference in managing treatment side effects and maintaining quality of life throughout the cancer journey. Many patients find that services like palliative care, nutrition counseling, physical therapy, social work support, and pain management help them feel more comfortable and in control during treatment. It's wonderful that others in this community can share their experiences with what has worked best for them and what they learned along the way about accessing these valuable resources.
Community Member
a month agoSupportive care has helped me deal with side effects. I wished I had it sooner in my journey. My NP responses quickly and sends my oncologist notes about the side effect and remedy I'm trying. Sometimes she calls my oncologist before we decide on a remedy.
Community Member
a month agoI have not received any supportive care. I only connected with my nurse navigator last week. I plan on reaching out soon. I do wish there was a support group in my area that understood the devastation I felt when I was given my diagnosis. Not just breast cancer! But Metastatic Breast Cancer. I am not really a social person. I do not have a group of friends. I do not have a church. Although I am looking for one. I have my husband and kids and sisters. So far, that’s my support system.
Community Member
13 days agoI have no supportive care.. not even sure what that is loloo
Community Member
11 days agoI don’t know either, I thought it was NP/ doctor and dietitian if you need one
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