Seeking Help with Kisqali Medication Access for Stage 4 Breast Cancer

Alexandria, I'm so sorry to hear this. Per the NCCN, hormone therapy is usually the first line of treatment if your cancer is HR+. If you fill out your diagnosis on this app, it will give you all recommended treatments. I believe Kisqali is now the first recommended hormone therapy along with letrolzole, bone strengthen therapy plus calcium and vitamin D3. Try the Novartis website for payment assistance. I've been on hormone therapy for 8+ years. I have had good results so far. I started on Ibrance and letrolzole plus Xgeva, Vit D, calcium. Now, I'm on Kisqali and exemestane plus Xgeva, Vit D and calcium. I'm experiencing diarrhea (side effect) so my Dr is reducing the strength from 600 mg to 400 mg. I've had disease progression twice. Once to my skull and then to my spine. Both times I had radiation to kill those lesions. I have extensive bone metastasis. It's too many to count. It is not below my elbows or knees. I have only one lesion that is currently lighting up in scans. I'll have that one radiated if the uptake is 3. I believe you will do very well on hormone therapy. I know several women that had lesions in their organs that don't have them anymore due to the hormone therapy. Focus on a positive mindset and you will live very well. Sending you prayers, too. I care, Ginny

Try to get a grant to help pay...I received a grant from the Healthwell Foundation.

Lilly corporation also does grants! Keep after it and don't give up...prayers and hugs.

Been on Verzenio, Zometa infusions, and estrogen killer...anastozole for 1 1/2 years fir stage 4...now in remission. Thus hormone therapy works. Had lesions in liver, lungs, lymph nodes, bones, and breast. Now most are gone or diminished. Some side effects but not bad.

Was diagnosed 2yrs ago with stage 4 metastatic breast cancer in left breast that spread to right pelvis, sternum, lymphnodes, left shoulder and in L3,L4 & T10 in my back. Been on kisqali then verzenio and no on Capecitabine 1000mg twice a day. Was on oral meds to block the estrogen and progesterone but been on injections for that which 1 of the injections was stopped when chemo was started also done radiation a few times for my pain

So, it is very inspiring to hear your status. Thank you for sharing! Best wishes♡ I have a very similar situation ( left breast , liver and lungs) at the 2year mark on chemo, (pertuzamaub & perjetta)still first line therapy which is showing progress across all my current scans, liver mets are all but gone... I'm not in remission, but of course, Im praying daily for remission to happen for me...asap! Again, thanks for sharing your story, Alexandria! It gives me hope for my future outcome. : )

Bonnie T. Been praying and had the anointing of the sick 3 times so far. My oncologist was hesitant on putting me on oral chemo and more hesitant on chemo by infusion with the risks of it could mess with my heart and still recovering from 3 strokes this past May. You are in my thoughts and prayers

Thank you, Deanna. Im praying for you as well...my chemo therapy has been all IV (q3wks), no oral. We all have to do whatever it takes to somehow sustain a meaningful quality of life while battling this awful disease. Thank God for all < warriors> willing to share their journey and sincerely care about others in the same or similar situations. We truly need each other's support. God Bless~

Bonnie T you are in my thoughts and prayers along with all my pink sisters

Hi did you get a liquid biopsy or biopsy of tissue to see what medicine it is sensitive to? My doctor used foundations lab.

@Zina I’ve only had the 1 biopsy in the beginning no other biopsy has been done.. I FINALLY got the approval for the Kisqali

Glad you got the approval! I had to fight for that as well for my meds, it can be so stressful and sometimes it seems like the people you talk to are clueless about what their company even offers. So inspiring to hear everyone’s stories! I have MBC w/brain, lymph node, liver, lung, adrenal and extensive bone involvement. It’s nice to know others have survived years with similar issues. Blessings to all, you are in my thoughts and prayers <3

Hi, I have metastatic Cancer throughout my whole body and I have undergone all the common USA meds, Germany, Africa, and Russia Chemotherapy and Radiation medicine. I am currently undergoing Canada's and it's working well. My tumors have changed their markers and they're slowly disappearing. I am undergoing them thru AI and IV in the hospitals.

Sally, are you in clinical trials? What's the names of the drugs you are on?

Hi Virginia, I'm on a lot of Chemo meds. Too much to name. But was in the hospital for the last 2 weeks and underwent everything. From chemo,radiation, immunotherapy, surgeries. And post op. Was unable to walk for 4 days. They were brutal. Painful 😔. Still Painful. I'm having a hard time taking a shower due to the redness and tenderness of my butt. Any suggestions?

My doctor helped me with the pharmaceutical company and they gave me a full grant which is about $3000.00 a month.

Navigating medication access can be incredibly frustrating, especially when dealing with insurance approvals and assistance programs for medications like Kisqali. Many community members have shared similar experiences with the approval process, and connecting with patient assistance programs, social workers at your treatment center, or your oncology team's financial counselors can often help streamline the process and identify additional resources available to you.