CommunitiesLiving with Metastatic Breast CancerWhat's your experience with Lynparza after Ibrance and Kisqali?

What's your experience with Lynparza after Ibrance and Kisqali?

JB

Community Member

2 months ago

Hello everyone! Has anyone been on Lynparna and If so what has your experience been like? I'll be starting on it next week. 1st was on Ibrance for 2 years and then Kisqali 2 years.

7 comments
Comment
CA

Community Member

2 months ago

Starting a new treatment can bring up so many questions and feelings, especially after being on previous therapies for several years. Many community members have shared their experiences with Lynparza, and connecting with others who understand this journey can provide valuable insights and support as you take this next step.

TY

Community Member

a month ago

I have been on Lynparza for 16 months with no evidence of disease as recently as last Friday

2
JB

Community Member

a month ago

Theresa, It's very good news to hear you have no signs of disease 🙌🏽 I am Mets to Bone now and BRCA2 as well & will be getting Zometa infusions for the bones. Is your case similar ?

TY

Community Member

a month ago

I also have the BRCA2 gene

TF

Community Member

a month ago

I was on Lynparza for my mTNBC it didn’t work well for me. I was only on it for 3 months and my cancer was progressing so my doctor decided to stop that line of treatment. It used to make my mouth taste like metal. The doctor said that sometimes heartburn will do that so I was put on famotidine to help with the heartburn and it helped. Besides that I think I had hair loss on it too.

JB

Community Member

a month ago

So sorry to hear that Tiffany 😞 Whay did your doctor change your treatment to and how are you doing now? I take Pantaprozole and Famotidine for heartburn as well but I've been dealing with it for years. My hair has thinned alot but I've been on 3 different treatments in the last 4 years. I started on Ibrance for 2 years then switched to Kisqali and it stopped working and cancer came back to bones now on the Lynparza. I pray that things are better for you 🙏🏽

HJ

Community Member

11 days ago

I've been on Ibrance and letrozole since Jan. 2020. Within this time frame I've had 3 different rounds of radiation on my tailbone and areas down my spine. I've inquired if meds are not working now. I'm now having lots of heartburn and nausea/vomiting. After 6 years could these meds stop working. Anyone with these issues?

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