Has anyone had oligometastatic lobular breast cancer with liver lesion?

Finding others with similar diagnoses can provide valuable connection and insights. Oligometastatic disease, particularly with liver involvement, affects many people in this community, and sharing experiences often helps with understanding treatment options and what to expect. Hopefully, community members with similar situations will see this and be able to connect with their experiences.

I have oligometastic lobular breast cancer with a spot on my liver that was treated with SBRT radiation last year and is stable and a spot on my L5 vertebrae that had SBRT about 6 months ago, also stable. I also have the pik3 mutation.

What medications are you on? What do you mean by stable? I am sorry but this is all new to me so any info u can offer is greatly appreciated. Thank you

Hi. No need to apologize. 😊 I’m 64 ILC hormone+ her-. Originally dx May 2023, single mastectomy clear pcr no lymph node involvement. Finished chemo treatment in October of 2023 stage II. Prescribed hormone blockers. December of 2024 my ca-15 blood work spiked so I had scans and found mets January 2025 to liver and spine. They also found that I have the pik3 mutation and they think the pik3 is the reason I went from stage II to stage IV because it makes the cancer cells resistant to hormone blockers (AI’s). I did have SBRT radiation on both spots in February of 2025. Currently on ibrance, itovebi, and faslodex. My scans show the liver spot slowly shrinking and the spot on my spine is pea sized and has not changed since it was found last year. (Both spots stable) I am taking itovebi to treat the pik3 mutation. The pik3 mutation makes my prognosis somewhat poor. You don’t have that so I would think you will have a better prognosis. I am scheduled for another scan next week so I will update then. What treatments do you take? I sincerely wish you all the best and I hope that everything will work for many years for both of us!! Please feel free to reach out anytime.