Communities›Living with Metastatic Breast Cancer›Are There Long-Term Survivors of Metastatic Breast Cancer?

Are There Long-Term Survivors of Metastatic Breast Cancer?

CO

Community Member

3 years ago

I am 49 years old and just learned I have metastatic breast cancer. Are there any long term survivors here? I am just looking for some hope.

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36 comments
Comment
accepted answer

Accepted Answer

Many people in this community are living meaningful lives with metastatic breast cancer, and while everyone's journey is different, there are indeed long-term survivors who continue to thrive years after diagnosis. The advances in treatment options have given many patients extended time with loved ones and the opportunity to continue pursuing what matters most to them.

3+ patients found this helpful

KS

Community Member

6 months ago

Your gonna get a lot of years you wonderf ladies

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KC

Community Member

6 months ago

19 years 5 times and know that the newer research is amazing. Keep going on.

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RM

Community Member

6 months ago

I was on ibrance and letrozole and my cancer started in my breast and then into my bones even skull. They did a mutant test and found they were approaching it wrong for 3 years..ugh. I looked into Elacestrant and told my oncologist I want to going on that.. it's only 1 pill daily with no other. I go for bone infusions to zometa..I was diagnosed in 2017 a week after my husband of 18 years took his life. I'm raising our son alone šŸ˜” but he's my strength and I won't give up. It's a diagnosis not a life sentence. The key is to be positive and don't give in. āœØļø

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JB

Community Member

6 months ago

Have met breast cancer . started as stage 3. Now,5 yrs later am met 4.DOing supplements to keep cancer at bay. Read Starving cancer by Jane mclelland. Without info, I would be dead already.Good luck

6
RZ

Community Member

6 months ago

I have quite a few friends who have been stage 4 over 20 years. One is over 40 years. There are so many new drugs and drugs in the pipeline that we are living significantly longer than we used to.

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CB

Community Member

6 months ago

Diagnosed Oct 2017 with MBC with METS to liver. Oct 2021 recurrence with 2 spots in liver. I’ve been on Ibrance and faslodex since Jan 2022 and seem to be handling treatment okay. I’ve started Breast Cancer Recovery Pilates with my PT and I’ve feel so much better, more mobility and feel like I have a long, bright future. I’ve got things to do and not about to let C change my course.

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LE

Community Member

6 months ago

11 years here. I had a double mastectomy in 2012 was great. Then found out I had metastatic breast cancer to my bones. I was put on letrozole and Ibrance I also take vitamin C, calcium, vitamin D3, magnesium and I drink a lot of water. I also have four grandkids for an under that’s keeping me going. There’s always hope Charlotte you just have to decide.

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AO

Community Member

6 months ago

I’m 47 yo dx when I was 38. I looking forward to hitting the 9th year mark May 1, 2024. There’s hope šŸ™šŸ½

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MG

Community Member

6 months ago

I’m coming up on my first year since my diagnosis of breast cancer mets to spine…de novo. I’m responding well to meds, except for fatigue which very well may be connected to Afib…but that’s another issue:-)

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SU

Community Member

6 months ago

I was diagnosed in August 2019 and was on Ibrance and Aromasin for 4 years with very few side effects. I started having progressive in July, and I started on Orserdu in September for the the ESR 1 mutation. Try to live your normal life, ask people to pray for you, join a support group and read the book Radical Hope by Kelly Turner.

5
LD

Community Member

6 months ago

I was diagnosed with metastatic breast cancer (stage IV) in 2016, one year after my double mastectomy (I was initially diagnosed with Breast Cancer in 2010 when I was 47). I started IBrance Jan 2017 and had to stop taking it due to low WBC in 2019. I was then put on the Affinator until last year when the cancer started progressing. I started PIQray and was given Zometa in January of this year until last month when PET Scan and labs indicated it had stopped working. I am now getting ready to start Capecitabine with Zometa fingers crossed this works for a while. I am currently 60 years old and still going strong. The key is to have and keep a positive attitude and keep doing the thing you have always done. Eat healthy and enjoy every moment!

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JC

Community Member

6 months ago

I’m on my 6th year so when I see 11 and 19 years I’m inspired! I’m 54. I count from date of Mets not from original cancer date. I’m not sure if that’s the way to do it or not?

4
MA

Community Member

6 months ago

I just hit 14 years with metastatic stage 4 cancer. Had bi-later and had them removed and now I take Kisquli for 21 days per month and doing well. So there is hope and I have a outlook that it's not going to beat me.

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SG

Community Member

6 months ago

This year I hit 19 years LIVING with bone mets!!! I am unfortunately not the norm but us long term thrivers are out here. There is so much hope and new therapies being developed more and more.

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LZ

Community Member

6 months ago

So I’m stage 4 with Mets to my bones only. I was de-novo in August 2021. I only have had 2 nodes & a biopsy done. I’ll be starting another round of Ibrance 100mg tomorrow. I started this & Letrozole in Nov. 21. My labs come back good & my scans show lesions are showing no new activity in Mets & tumors are undetectable during exam. I don’t have the hot flashes like I was & I get Xgeva injections to strengthen my bones & it has been a game changer. šŸ™ I am hoping to get to 5 years & then I will hopefully still get to keep on keeping on. 19 years would be awesome!!!

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JA

Community Member

6 months ago

I have metastasized breast cancer to my bones. It has been 4 years since my diagnosis. I was told I have oligometastatic disease, which means it only spread to one place in my thigh area. I have been told that it may be curable if it is aggressively treated. I had a mastectomy, radiation, targeted chemotherapy and Anastrozole. I am now on Herceptin every 3 weeks. They test me often and I am cancer free.

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AM

Community Member

6 months ago

im 49 too. bones and liver. de novo . going on four years .

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AM

Community Member

6 months ago

im 49 too. bones and liver. de novo . going on four years .

6
TL

Community Member

6 months ago

I was diagnosed de novo metastatic breast cancer with lymph node involvement and a malignancy in my pleural area in June 2020. I have been NED since 02/2021. I am HER2+ taking a daily Anastrazole and Herceptin and Perjeta every 3 weeks. I am 59 yrs old

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JW

Community Member

6 months ago

Been MBC since 2017. On at least the fifth or sixth course of treatment. Living a mostly- normal life.

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MS

Community Member

6 months ago

I was DeNovo Metastatic in June 2018 with right Breast, Nodes, Sternum and Spine. It has ALMOST been 5 years!! šŸ˜‰ I have been "Stable" since my 1st line of treatment.

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RH

Community Member

6 months ago

I survived 13 years got it ar 36. I:'m 50 and it's back

10
KC

Community Member

6 months ago

Yes 20 years 5 times and still going.

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KC

Community Member

6 months ago

I have just learned after using this term for many many years that we are not NED. If you had cancer you will always have evidence of some kind. I now say that I have NET. NO EVIDENCE OF TUMORS. WHAT DO YOU THINK ?

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PM

Community Member

6 months ago

I was first diagnosed with breast cancer in 2015. Had a lumpectomy, chemotherapy and radiation because my cancer was tested and was rapidly growing. Finished treatment but stayed on exemestane for approximately 4 years but went off of it because I was beginning to have lupus symptoms. Retested after a year off of medication and numbers for lupus remained the same. However, I should have gone back on the exemestane once it was established that the lupus was not medically induced. In July 2023 I was then diagnosed with stage 4 metastatic breast cancer to my bones. Currently on Kisqali for 3 months now. Had radiation to my cervical, lumbar and left acetabulum. Went back on the exemestane in July 2023. Hoping for long term recovery and healing. Blessings and strength to all! 😊

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