CommunitiesLiving with Metastatic Breast CancerMy liver tumor markers went up—what now?

My liver tumor markers went up—what now?

GJ

Community Member

22 days ago

Grand Rising everyone! I'm on the check-in. I just found out on my pet scan that my liver tumor markers have went up to 183. Whoa! I've seen my images and it's lighting up. I feel so discouraged especially with my hip pain as well. My treatment remedy has stopped working. And we are going with something else which I will be educated on. But I haven't made a choice yet. Decisions decisions. We all hope we make the right one. I'm standing tall in all that I am in the woman that I've became and the woman that I'm becoming. Life changes and things happen to us. But we have to stay strong guys! We have to trust ourselves and our choices. I get tired of these doctors though. Sometimes I feel that I know more than them. Obviously it's not them going through it it's us going through it. And they have to put that in the perspective. Sometimes you have to snap your doctor out of the tunnel vision of dealing with so many people with so many issues of Cancer. Sometimes I think we know too much we learn too much and we start to think too much. Well it comes with the territory I tell you. Stay hydrated stay positive all is well to all of us!🌷🦋🩷

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2 comments
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CA

Community Member

22 days ago

Rising tumor markers can feel overwhelming, especially when a treatment stops being effective. The strength and positivity shared here while navigating these difficult decisions is truly inspiring. Having open conversations with the medical team about all available options, asking plenty of questions, and advocating for the best possible care approach can help ensure the next treatment plan feels right.

SB

Community Member

16 hours ago

I am an oncology nurse of 40+ years dealing with stage 4 metastatic breast cancer. My PET last month came back with evidence of mild progression. I've been on Ibrance/ fulvestrant for 62 months. So now I had a Guardiant 360 liquid sample sent which suggests I change to Verzenio and Aromasin. Im so scared of starting on the highest dose because with my Ibrance I had pancytopenia and suffered a large DVT from popliteal to groin. But I am also afraid to ignore the results even though they were <0.05. I feel fine( unchanged) but mentally I am afraid I am starting a downward slide. I live alone and have no one to talk to so it makes me worse mentally.

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