Concerned About Skull Metastases Spreading to Brain

I did have skull mets. I did radiation to my whole skull. They haven't come back that I know of. They didn't break through to the brain. Lost my hair but some has come back.

Thank you Virginia 🙏🙏

Yes I had one treatment of radiation to the brain. I had several spots on the bone itself on the skull, but was told that as long as it’s on the bone, it does not penetrate into the brain so so far the brain is good after the one radiation treatment

Thanks you Cindy. This is great to hear.

Hello, this is my second breast cancer diagnosis since my mastectomy and lumpectomy 07/13/2021. Currently metastatic breast cancer will known elisions to spine, femur, spleen, liver, old mastectomy site and lymph. New oncologist is going to start me on Letrozole. I am worried about serious side effects such as DVTs and osteoporosis. Can anyone share their experience with me regarding this medication? Thank you!

Hi Lora. I have been on Letrozole since November 2024 and have been taking calcium and vit D. Also on Zometa infusion for bone strengthening and on targeted therapy ( Kisqale)...maybe you can ask about these other treatments too to see if they apply. With Letrozole I have a lot of hot flashes even though I was on Tamoxifen b4 metastatic diagnosis. I also do a cancer exercise program and try to be active to minimize DVT.

Hi Lora! I’ve been on Kisqali and Letrozole since Aug ‘23, and so far I haven’t experienced any side effects, or at least nothing that’s caused me concern.

Waiting for test results can bring so much anxiety, especially when dealing with metastatic disease. While skull metastases don't always spread to brain tissue, it's completely natural to have concerns about this possibility. Many community members have shared similar worries about bone metastases near the skull, and connecting with others who understand this specific fear can provide valuable support and perspective during this challenging time.