CommunitiesLiving with Metastatic Breast CancerNew to stage 4 breast cancer - anyone have experience with Verzenio side effects?

New to stage 4 breast cancer - anyone have experience with Verzenio side effects...

CW

Community Member

6 days ago

Hello to everyone, I’m new to the group and would like to tell you a little about myself and why I decided to join this group. My name is Chawn, I’m 48, I’m from Alabama and I’ve been diagnosed with stage 4 metastatic breast cancer with metastasis to basically every bone above my knees and elbows. I have good days and bad days. Most days now I require the use of my handy dandy walker. Which irritates me if I’m being honest. I started out on kisquali and leterazole along with infusions once a month to strengthen bones. ( not to mention boat loads of pain meds) fortunately the tumor in my breast completely disappeared while taking this treatment. Unfortunately, I suffered from a rare side effect that caused interspacial lung disease and almost killed me. I have just this past month started verzenio. Has anyone had any experience with this med. my hair has been falling out and I’m very nauseated and fatigued almost all the time . 🤢 I joined this group because again if I’m being honest, sometimes I feel very alone in going through this. I would love to have someone to talk to who gets it. So if any body has any words of wisdom or encouragement I would love to hear them.

2 comments
Comment
CA

Community Member

6 days ago

Welcome to this caring community where many members understand the challenges that come with treatment changes and side effects. Verzenio can indeed cause fatigue, nausea, and hair changes as the body adjusts to the new medication, and connecting with others who have navigated similar experiences can provide valuable insights and emotional support. Since you mentioned feeling alone in this journey, consider reaching out through the Ask Outcomes4Me box on the Home Screen to connect with clinical care experts for more personalized support, and remember that the 988 hotline is always available if you need someone to talk to.

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PJ

Community Member

6 days ago

Hi Chawn, I stand with you in support. My diagnosis and meds are very similar to yours. I am 1.5 years on kisquali and leterazole (and monthly infusions with Zometa). I have had very few reactions to these meds, except a little aches after my infusions. Also, my tumor is almost completely gone with hot spots in my shoulders and lower back. I have an amazing support group, oncologist, primary care physician, AND wellness doctor. I was immediately told upon my diagnosis to walk every day and follow an anti inflammatory diet. I have not done anything extreme with regards to my diet, still eating chicken and fish, except increasing my intake of fruit and veggies that support my immune system. I always wear a mask, rest, and talk to my support group/village. I am not familiar with Verzenio, but I encourage you to please communicate frequently with your oncologist. My health journey makes me feel various feelings from day to day (some days I am strong and other days overwhelmed with all the care I have to give to my body, both mentally and physically). I am a Christian, so I lean into my faith to keep my mind peaceful and calm. This is all foreign and unfamiliar to me, however I have learned to take one day at time. Each day I thank God and ask him to help me and everyone in this community. Please know you are not alone. This diagnosis does not define you and there is more to you than all that goes into managing your health. Your future is bright and you have a lot of living to do. We got you and we are here for you🩷

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