Living with Breast Cancer Metastases: Seeking Experiences with Pleural Mets

Naz, I haven't heard of pleural Mets. Hopefully, the Kisqali and letrolzole will help. I just stopped Kisqali due to side effects of interstitial lung disease and inflammation in my lungs. Praying for you.

Hi Virginia... thank you for your reply 🙏 ❤️ I hope the alternate treatment works for you... 🙏🙏❤️❤️

Thinking of you and sending hugs your way. I have MBC as well.

Thank you Karen ♥️🙏

I have MBC in my bones from my elbows to my knees. There is no bone in between without cancer. I also have spots on my lungs. I take Ibrance as well as 2 shots per month and an infusion every three months. My ibrance was just lowered from 125 mg to 100mg. My last blood test showed my kidneys were not working as well as they should. I have little to no pain. My treatment has been about 14 months now. I am tired all the time and have little to no energy. Any suggestions. Thanks

Anyone taking vitamins?

Have been asked to not take vitamins... only raking vit D and calcium.

Naz- I wonder why they said not to take vitamins? My markers went from an initial of 1800, then down to 30 now back up to 1800 4 months later. Between the 1st and second tests I wasn’t consistent with taking vitamins but have been since. Maybe that’s the difference in results?🤔 Prayers going up for you now!

Hi Kelly... I think it depends on the medication maybe...I am on kisqale which is metabolized by a liver enzyme and I think some vitamins have similar interactions? I wasn't happy when i heard this ... my MD even wrote this in my consult note which I have access to read. I am in Canada and here they don't do tumor markers. The vitamins I wanted to continue taking were B complex, Mg, zinc... so nothing unusual. I am trying to get these through food now ... wishing you all the best in your treatment as well.

I was diagnosed with stage four metastatic breast cancer spread to the lymph nodes and lung/ pleural space. My lungs were full of nodules and did not allow fluid to exit my body. So I was filling up with a liter of fluid every week-in the pleural space. Having it tapped was difficult. That changed once I started on kisquali and letrozole.

So glad to hear that Janet 🙏🙏🙏

Hi everyone! A dear friend of mine has been on this journey for 10 years. We talked about vitamins this pass Monday. I am drinking freshly pressed fruits and vegetables while still experiencing weakness and fatigue. My friend shared that while the freshed squeeze is good, it doesn't have enough nutrients in it and for me to try the "Naked" drinks. I was introduced to Naked four years ago by another friend who was having a cancer challenge but forgot. Anyway, I sent my family to the store - Green Machine, Mighty Mango, and Blue Machine. I woke up this Tuesday like a new woman. No fatigue, no weakness......still walking a little slow but we could see an overnight difference. I have been able to stay up all day this week. Prayer is working and the wisdom of what helps naturally. I pray the best for everyone in our chat group. God is faithful!

Lunette, do these drinks have a lot of sugar?

Not a lot of sugar since it's natural ingredients. I am also Type 2 diabetic.

So sorry you are going through this. As far as pleural Mets, did you have fluid that was drained and test positive for cancer cells? Yes lung and the pleura are different, I now just have liver Mets. Hope you have the outcome of stable disease. Sending hunga

Thank you Stephanie 🙏🙏 I hope the same for you 🙏🩷 a tiny amount of pleural fluid showed on my initial CT chest but nothing has been done about it since I am nor short of breath...so no drainage so far... just on targeted and hormone therapy for now until next scans. I also had a spot on my liver that is suggested for surveillance... let us know how ur doing 🙏🙏🙏

Pleural metastases can feel overwhelming, especially when there's less information available compared to bone metastases. This community has members with various types of metastatic experiences who may be able to share their insights about pleural involvement and treatment responses. Hoping others will chime in with their experiences to help answer your questions about this aspect of your diagnosis.