Community Member
2 months agoTo those of you who are or have been NED how long have you been NED or were before it coming back?
Community Member
2 months agoNED duration varies greatly from person to person, and while some experience longer periods without evidence of disease, others may have shorter timeframes - there's no standard timeline that applies to everyone. Many community members have shared their experiences with NED periods, and connecting with others who understand this journey can provide valuable perspective and support during this time of uncertainty.
Community Member
a month ago5 months
Community Member
a month agoI have been NED for six years
Community Member
a month agoI was NED for two years on Kisqali. Then the cancer progressed.
Community Member
12 days agoMy first diagnosis was in fall 2011 had bilateral mastectomy then just a aromatase inhibitors for 7 years. It came back in 2023 found it because I thought I was having appendicitis and it turned out my cancer was in it. It’s in most of my bones, my peritoneal cavity, my omentum, my stomach. It’s under control I’ve been on Ibrance, Fasledex and Xgevia for 3 years.
Community Member
12 days agoI got 12 years
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