CommunitiesLiving with Metastatic Breast CancerHow long can you stay on Enhertu for brain metastases?

How long can you stay on Enhertu for brain metastases?

CP

Community Member

13 days ago

I am stage 4 hormone receptors negative, hers2 positive metastatic breast cancer. I was diagnosed in December 2024 with stage 3. I had 6 cycles of chemotherapy (Herceptiin), double mastectomy and 5 weeks of daily radiation. I was told no cancer January 2026. March 2026, I started with headaches just in the morning and two weeks later in the hospital with severe headaches, dizziness, nausea and balance issues. I was told the cancer was back and on the brain. I have 4 lesions, which I had stereotactic radio surgery (SRS) radiation therapy and now on Enhertu infusion. I was told this past week that I will stay on the Enhertu until it is no longer working or my body doesn’t tolerate it anymore. Has anyone else had this diagnosis and treatment? How long have you been on it? How successful has it been?

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3 comments
Comment
CA

Community Member

13 days ago

Treatment duration with Enhertu varies greatly from person to person, and many community members have shared their experiences with this medication for brain metastases. The approach of continuing treatment until it stops working or becomes intolerable is standard practice that allows for the most benefit while monitoring for any changes. Others in this community who have been on Enhertu may be able to share their experiences and offer insights about what to expect during treatment.

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MD

Community Member

12 days ago

I was on immunotherapy for four years until it stopped working. I am now on Enhertu.

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CP

Community Member

9 days ago

How have you done with the Enhertu? Do you have any side effects?

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