Has anyone else been diagnosed with metastatic melanoma?

Yes, I was diagnosed a little over a year ago.

Yes, almost 2 years ago for me

Yes I had surgery in July and I'm on my 3rd infusion Opdivo. They believe they got all the cancer it was a little deeper and wider than they thought but it had not reached any organs or in my lymph nodes! I was very fortunate. I opted to take infusions just in case 1 cell got by them...I did not want to mess around with this or have it ever come back. My cancer team at Northside was awesome. They are continuing to care for me.

Many people in this community share similar experiences with metastatic melanoma, and connecting with others who understand this journey can provide valuable support and insights. This is a caring space where members often share their experiences, treatment approaches, and encouragement with one another.

“Marnie — that was me in 2021. Back then, they weren’t offering treatment if the PET scan came back clear — and mine did. Boom — three years to the day, I notice a swollen lymph node in my neck. Turns out it was stage 4 metastatic melanoma. I’ve now been through two rounds of Nivo and Yervoy, a Modified Radical Neck Dissection, and thankfully healing well. I’m probably in for another year of Opdivo — who knows if there are still micro cells out there, but I’m not taking the chance. One thing I’ve learned: the clear scan doesn’t always mean the fight is over. But I’m still standing, still pushing forward, and trusting that this chapter will end in full remission.

Stage 4 in bilateral lungs and Opdualag put me in remission 🙏🍀

Stage 4 as of 2018 still here in May of this year doctor said that it would not kill me

I was diagnosed 1 year ago with Stage 3 metastatic melanoma. It started on left upper arm. It spread to a lymph node under my armpit. I have been taking Opdivo immunotherapy treatments now for 9 months.

Nancy how’s the opdivo been? I start on monday.

I had 11 mos of Opdivo and a horrible skin rash and itching. I couldn’t do the 12 mos. The cancer metastasized to the groin LN 8 mos later

My Dr said I had the strangest pigment ptosis he had ever seen

Yes. I was diagnosed 5 years ago to lymph nodes. Primary mole ( melanoma removed) Two resections of lymph nodes. First Optivo and Yervoy. Then Clear scan. Good response. 9 months later Returned to brain, lungs, lymph nodes. Placed back on Optivo and Yervoy. Poor response. + braf gene. Gamma knife to lesions in brain. Placed on mektovi and braftovi orally. Continued with now slow growth of tumors in groin lymph nodes. Awaiting TIL.

William, hope the Opdivo is going well for you. I had some itching and skin irritation early on but it has been a little over a year now and it does subside. These drugs do appear to be effective. Hang in there and stay positive

2023 removed melanoma on back. Postive on one lymoh node. Was clear but played defense. Did 6 months of chemo but side effects (chills & shaking than sweats) too much. June 2025 PET showed lesion in hip. Old oncologist thought to just wait for PET scan in two months. Bad choice, it spread in many places. MSK has me on Opdualag. Severe pain and ache from tumors is very tough. Hope to keep battling.

Started with a mole on my back, melanoma, surgery and successful removal. All clear margins but it's now MM in my left lung. On opdualag twice and hoping for treatment #3 today if my liver numbers cooperate. Hang in there. Prayers are with you.

Yes, June 2025

Yes. I was diagnosed with metastatic melanoma in 2020. Surgical removal, spread in many lymph nodes. Initially responded to Optivo and Yervoy. But due to Braf gene came back and spread to lung brain. S/p gamma knife to brain neoplasms and now responding to Mektovi and Braftovi. Was told I had a 50% chance to survive 5 years. Now they are considering TIL. Be compliant every year I have survived MD ANDERSON comes up with new treatments. Here’s hoping for 10 more years.

Yes I have metastatic modular melanoma for the second time now in an inner growing lymph node Dr decided to leave the cancerous lymph node in and I Had one of four scheduled opdivo yurvoy treatments. It went horrible with severe diarrhea I’ve lost 27 lbs in less than a month and I’m absolutely miserable. They say there is a drug out there that will help but it’s hard to get insurance to approve only after going through the drugs that don’t work. Finally had a two hour I V of ramadeck Hoping this helps I no longer care what A I says I should do I will never take another dose of yurvoy opdivo I’m convinced it will Kill Me.

Try Opdualag. It helped me, Opdivo didn’t and Yervoy with Keytruda didn’t help

Just had my third Opdualag treatment. This time, so far, isn't so harsh. Had my first PET scan since diagnosis yesterday. Hoping and praying for positive results. 🙏 👍 🤗