Community Member
3 months agoHas anyone had TIL therapy? I’m going to be doing it and I’m wondering what is in store for me. I’m ready to hear unpleasantness associated with it as well. It seems like it’s going to be a rough ride.
Accepted Answer
TIL therapy can indeed be challenging, and it's completely understandable to want to know what to expect from others who've walked this path. The community here has shared experiences with various treatments, and connecting with fellow patients who've had TIL therapy could provide valuable insights about the process and recovery. Consider sharing more about your specific concerns so community members can offer the most helpful perspectives based on their journeys.
3+ patients found this helpful
Community Member
3 months agoHi Neil, sorry you haven’t received a response from anyone who has experienced TIL yet. We’re glad you’re here and if you feel up to it would love for you to share your own experience with it once you’ve started. You never know who you might help in the future looking for answers just like you are now. We’re all rooting for you and hope you keep in touch. 💛 Suzanne (Community Moderator)
Community Member
2 months agoNo I'm taking opdivo which is like putting your T cells on steroids. I've heard of the treatment....it sounds fairly new and really good if they use your own cells to fight cancer. They are finding news ways all the time to fight cancer.,best of luck keep posting during treatment I'm curious how it does.
Community Member
2 months agoTIL therapy can indeed be challenging, and it's completely understandable to want to know what to expect from others who've walked this path. The community here has shared experiences with various treatments, and connecting with fellow patients who've had TIL therapy could provide valuable insights about the process and recovery. Consider sharing more about your specific concerns so community members can offer the most helpful perspectives based on their journeys.
Community Member
6 days agoNeil, also check out ImpactMelanoma out of Boston. They host a national TIL support group do monthly calls.
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