Living with CLL: Feeling Alone and Seeking Support

I’m so sorry. Are you newly diagnosed? Do you have anyone in your family, or a close friend, who you can share how you’re feeling? I have to make a decision every morning when I wake up if I’m going to fight cancer today or allow cancer to control me today. It may be a slow-roll out of the bed, but I will NOT give cancer, and surely not satan, the satisfaction of controlling my day(s)!! My prayer for you is that you won’t either! Hang in there Lynda!

Hey Lynda, it can be very lonely at times if not all the time. We here on these chat rooms are with you. We all have our unique journeys, but all of our journeys are interconnected. Keep up the fight 💪🏽

https://www.mdanderson.org/cancerwise/6-ways-a-social-work-counselor-can-help-during-cancer-treatment.h00-159537378.html

https://www.mskcc.org/experience/patient-support/counseling/support-groups-programs/virtual-programs

I’m sorry, I’m also struggling so please don’t feel alone. 🥰

I have CLL and feel out of control. So tired on a regular basis.

I’m sorry, I’m not familiar with what CLL is but I’m sounds like it’s taking a toll on you. I wish for you to feel better. 💐

Sending you a virtual hug. I hope you have a successful treatment regimen.

I'm sorry it does suck I feel that way all the time anymore

I have it too, and I just started treatment. So i'm tired. Just know you're not alone.

Hi Lynda! As you scroll through you will see that there are many types of cancer. Everyone here has faced some of the same challenges. Shock,fear, anxiety,stress, despair We all handle it differently, but we are all here to help and support each other. Know that you are are not alone in this journey! 🙏

I have had CLL for 23 years and now it has spread to other parts of my body. Very scary and feeling down.

Hi! Marge, sorry to hear about your CLL situation. I think we all have a fear of any reoccurrence happening. Prayers, thoughts and hugs! We all here to support each other! 

I can relate. My family gave up on me and I have no friends. I live alone, I get extremely lonely and all I can do is cry.

Prayers that just one small thing will bring you a smile every single day, Sharon. Watch for small things and hang on to them. 🙂‍↕️🙏🏼🌿🍁

Reaching out here shows real strength, and this community understands the challenges that come with a CLL diagnosis. Many people find connection and understanding in spaces like this one, where shared experiences can help reduce feelings of isolation. For more personal support and to connect with clinical care experts, scroll down the page from the Home Screen of the app to find the Ask Outcomes4Me box to get in touch, and remember that the 988 hotline is also available anytime for additional support.